Forcing Stars to Shine
In response to my recent blog item on Jenny McCarthy's now-you-see-it, now-you-don't Indigo Moms site, commenter Mary-Ellen defended the actress for putting herself out there as an advocate for her autistic son, "unlike other celebrities who have decided to hide their child's Autism and not be advocates to help raise money (John Travolta anyone?)"
John Travolta seems to be in some hot water lately for not publicizing the alleged autism of his son Jett, not becoming a high-profile autism advocate, and even for not providing appropriate treatment, according to an acquaintance who has leveled child-abuse charges.
It's always inspiring when a star steps forward to share his or her child's challenges and put a famous face on a condition that needs attention. Toni Braxton tugged hearts while tearfully discussing her son's autism on The View. Greg Grunberg, whose son has epilepsy, has come up with some creative ideas for raising research funds involving his Heroes co-stars. People who never would have heard of Krabbe Disease have been made aware because Pro Football Hall of Fame member Jim Kelly put up a site about his son's struggle.
Given how bright a light stars can shine on a cause, I guess it's only natural to resent stars who fail to blaze, whether due to privacy concerns or denial or different theories of care or just plain old disinterest in being the face of a disability. Can we really obligate celebrities to go public? We already strip them of pretty much any right to privacy; shall we force them to act upon their right of free speech?
I don't know what the story is with Travolta and his son, or why the family has chosen not to become spokespeople. Since they're Scientologists, maybe what they'd spokes for is not what a lot of autism advocates would want to hear, anyway.
But I do think there's a degree to which celebrities really can't win with this stuff. I remember seeing a comment on another blog about Grunberg's work for epilepsy research, and that commenter was ticked off that the actor was supporting a cause that benefited a member of his family. It's hypocritical for celebs to shill for research on disabilities their children have, the commenter felt. They should be completely altruistic and only stand up for charities that benefit them not at all.
Perhaps we can have some sort of celebrity lottery, and everybody beyond a certain degree of fame can pick a cause to represent out of a hat, and support it with all due heart and energy. Maintains the children's privacy, keeps the celeb's image pure, and every charity gets a little lovin'. I smell a reality series!


Comments
I can’t imagine what it must be like to be a celebrity. Not only do people strive to get a glimpse of your life, but when they make judgements about your life, they get a lot of media attention (fame by proxy).
Now, I’ve had friends and family suggest a diagnosis for my son, and I tend to agree with them, but until the doctors agree, I have to accept that I am not a trained professional and simply cannot make such a statement.
Until someone with credentials, or with the power of guardianship, says the boy has autism, I can’t accept it as more than rumour. Eccentricity comes in many colours, after all, and I just don’t know enough.
Special Needs Ironically at this late hour I am surfing the web trying to find help outside of my state……I look out the window and what I see if a physical paradise however I have been fighting for the rights of my son who had a difficult birth, however is trapped and for 19 yrs have continued a battle that now is in court, treated much like Hester Pringle…how dare ye for thinking that my son has a “brain”, that my son has a future outside of a group home! No he can’t sit, no he can’t wak, no he cant talk no he can…t but he has a MIND! So I read this today, a parents decision not to be pro active…and I can only say……I have been watching that mind set for the past 20 years and can’t Identify. everyday even now I have hope when I see him smile……that tomorrow will be a better day. I have four (OJ team). lawyers against me with my lawyer ex wanting to put him away.. to take his rights, mine,, I sit with no money…….but my tenacious heart cries out for help. I believe its very primal what I am experiencing. That when mother’s give birth we are there to teach, to protect until that baby, child, young adult can “leave the nest”, when that baby doesn’t go through the steps……of “moving out”,, I believe that same primal instinct,,,,grows stronger!!!! MY SON HAS EVERY RIGHT TO SUCCEED! I applaud Jenny McCarthy and all of those mother’s who take the banner and run with it, regardless of the negative responses