What It Is: "LivingWithLGS.com is here to help provide a bond of strength at a difficult hour, when your child's world is coming undone. Strength comes from information, understanding, and community. We connect parents and caregivers of children with LGS [Lennox-Gastaut Syndrome] with the resources they need to be strong -- information about LGS, treatment options for those who have LGS, and support for families."
Who's Behind It: Eisai, "a human health care (hhc) company seeking innovative solutions in disease prevention, cure and care for the health and well-being of people worldwide."
Why It's Worth Checking Out: It offers clear and thoughtful information for parents on Lennox-Gastaut Syndrome, including school issues and a video, "Navigating the Storm," designed to "help you understand more about the disease, offer a list of questions you can ask your own doctor, and provide suggestions to help families dealing with an LGS diagnosis."
Where to Start: LGS and Family
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