1: REQUEST publications for parents, relatives, and friends from the CdLS Foundation.
2: BE MATCHED with another family in your area affected by CdLS.
3: BROWSE through a family photo album of children living with CdLS.
4: JOIN CdLS Kids or an e-mail support group like it to get feedback from other parents.
5: VISIT our listing of Cornelia de Lange Syndrome links for more information and ideas.
Do you have suggestions for parents of children newly diagnosed with Cornelia de Lange Syndrome? Tell them about that book that explained everything, that website full of resources, that e-mail group you still lean on, that experience with your child that made you see things differently. Those of us who have been there have important gifts to give those who have not yet done that. Offer your words of wisdom and experience where you see "Readers Respond" below.
