Sorting through the wealth of online information on albinism can be a daunting task. What's worth reading, and what's a waste of time? Start with this recommended list of resources to find the information you need to understand and help your child.
On this Parenting Special Needs site
There are lots of articles on this site of interest to parents of children with albinism, but these three will give you a good place to begin.
From the About.com guide to Rare Diseases
Mary Kugler, R.N., the About.com guide to Rare Diseases, offers information of interest to parents of children with albinism. Start with these three articles.
Just the facts
These reference sites give good overviews of albinism diagnosis and treatment.
These organizations offer support and resources for families of children with albinism.
Find out more about albinism research, and how your child can participate, on these sites.
Social and cultural issues
Examine the way albinism has been regarded in popular culture, and find some positive reflections on the condition, on these thought-provoking sites.
Connect with other parents of children with albinism through these support sites.
Read these weblogs to follow parents of children with albinism through their daily experiences.