Before You Look for Information on Angelman Syndrome

Sorting through the wealth of online information on Angelman Syndrome can be a daunting task. What's worth reading, and what's a waste of time? Start with this recommended list of resources to find the information you need to understand and help your child.

On this Parenting Special Needs site

There are lots of articles on this site of interest to parents of children with Angelman Syndrome, but these three will give you a good place to begin.

• What Is Angelman Syndrome?
• First Five Things to Do After Your Child Is Diagnosed With Angelman Syndrome
• Preparing the School for Your Child With Angelman Syndrome

Just the Facts

These reference sites give good overviews of Angelman Syndrome diagnosis and treatment.

• About.com Rare Diseases
• Genetics Home Reference
• Mayo Clinic

Angelman Syndrome Organizations

These organizations offer information, services and support to families of children with Angelman Syndrome.

• Angelman Syndrome Foundation
• Angelman Syndrome Association of Australia
• Canterbury Angelman Syndrome Support

Research

Find out about research being done on Angelman Syndrome on these sites.

• Foundation for Angelman Syndrome Therapeutics
• University of Washington, Seattle
• The Angelman Project

Personal Sites

These pages offer personal stories from parents about their children with Angelman Syndrome.

• Army of Angels
• Molly's Voice
• Video: My Little Angel

Online Support

A support group can be an important source of guidance in parenting your child with Angelman Syndrome. Start with these three resources.

• The Angelman Syndrome Forum
• Angelman Syndrome Facebook Group
• Angelman-L