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News on Autism Spectrum Disorders

News stories of interest to parents of children with autism, from the Parenting Special Needs blog and news sources around the Web. For the latest news, go to the Today's News folder.
Drama Therapy Opens Up New Alternatives to Autism Therapies
From Autisable: "Drama Therapy is generally defined as the use of drama and theater processes toachieve therapeutic goals. The technique is often used in schools, hospitals, correctional facilities and the mental health field to achieve behavior change, personal growth and improved emotional stability." (11/4/09)
The Limits of ABA
From We Go With Him: "'State of the art' ABA having seen fit to 'manage' Charlie's 'behaviors' with the less than artful, and quite forceful, methods of a helmet and physical restraints, it indeed seems that ways of helping him need be sought elsewhere." (11/2/09)
Artist With Autism Puts Extraordinary Memory To Work
From Disability Scoop: "A 20-minute flyover is all Stephen Wiltshire needs to create a stunningly detailed skyline drawing from memory. Now, the artist who has autism is taking on New York City." (10/27/09)
Landmark autism law passed today
From Left Brain Right Brain: "The Autism Bill passed its final stage in the House of Lords today to become England's first ever disability-specific law. The National Autistic Society (NAS) heralded the new law as 'groundbreaking' and said health and social care services could now face legal action if they failed to provide support for people with the condition."(10/23/09)
Advocates Worry That Autism Is Stealing The Show
From Disability Scoop: "Advocates representing those with other developmental disabilities say that setting up a special office for autism creates a two-tiered system when the needs of individuals with autism are often similar to the needs of individuals who have other diagnoses." (10/20/09)
Mercury Levels Not Abnormal in Autistic Children
From HealthDay: "A new study finds no differences in blood mercury levels between children who are developing normally and those diagnosed with autism or autism spectrum disorders." (10/20/09)
Why Are Preemies More Likely to Develop Autism?
From Reuters: "Researchers have long seen signs of autism in children born prematurely, and some studies have suggested that such signs can develop into full-blown autism in childhood. A study out Monday suggests that complications during pregnancy and early life may be responsible for this early risk." (10/20/09)
Are all autistics introverted?
From Spectrum Siblings: "Autistic individuals, like their neurotypical counterparts, come with the full range of personality traits. There are some, like myself, who are quite introverted, speaking only to close friends and never in groups. And there are some who are extroverted, always ready to meet a new friend or lavish some affection." (10/15/09)
Thousands Of UK Adults With Autism 'Consigned To Poverty,' Report Says
From Disability Scoop: "Most of the 300,000 adults with autism in the United Kingdom want to work, but only 15 percent have full-time employment, a new report indicates." (10/14/09)
Why Do Children With Autism Lose Words?
From Autism Games: "Today, I needed to think about why it is so common for a child with autism to lose vocabulary.  I saw it happen in the course of an hour in one therapy session and during the next session, a mother described her frustration with having her child regress into yelling rather than calling her as he was doing the week before. " (10/13/09)
The Joy of Knowing Children with Autism
From autism games: "One myth that is commonly propagated in the general media is that a diagnosis of autism is the equivalent of loosing a child to a fatal disease. It may feel that way to a parent for a while, but I have yet to meet a parent who would trade their child in for another without autism." (10/11/09)
Autism Insurance, Independent Living Get Boost In Senate
From Disability Scoop: "The health care bill emerging from a key Senate committee now includes expanded independent living options and autism insurance coverage, both of which are good news for people with disabilities, advocates say." (9/28/09)
'Shocking' idea: People with autism make good employees
From Disability News: "From Wired Magazine's list of'12 shocking ideas that could change the world', this one clocks in at number 2: 'recruit autistics'." (9/24/09)
What I have learned from people with autism
An Autisable post credits things like clear communication, owning one's quirks, and saying what you really mean. (9/18/09)
What, Even, IS Autism?
From About.com Autism: "Our present understanding of the autism spectrum is so vast, and so complex, that it seems to have become a catchall diagnosis for a whole range of symptoms, difficulties and differences. That makes it tricky to pin down, and even trickier to understand, treat or cure." (9/16/09)
Disclosing the best kept secret of autism
From Autism Examiner: "What's the best-kept secret of autism? Well, it may very well be the one that you're keeping. Whether you're a parent of a child with ASD, or someone with autism the debate rages on: 'Should I tell others about my/my child's autism, or not?'" (9/6/09)
As Jobs Dwindle, Woman With Autism Creates Own Avenue For Success
From Disability Scoop: Lisa Witte worked through the same job program for 15 years. But when funding dried up last year, the 29-year-old with autism turned a tough spot into an opportunity. Witte built on her skills as a rag maker -- which she learned to do at a Goodwill Industries job program -- to develop her own business." (8/31/09)
Chicago's top crime blogger is a 16-year-old with autism
From Autisable: "Timm's mom, Lisa, says his autism plays a part in the obsession. Repetitive, solitary behavior is, after all, a characteristic of the neurological disorder." (8/29/09)
Sen. Durbins speech on hiring workers with autism
From Easter Seals and Autism: "Quoting from a recent DePaul University study on the costs and benefits of employing people with disabilities, Durbin reminded his audience that people with autism and other disabilities make very loyal employees." (8/28/09)
Top 10 Ways to Improve Life With Autism
From Autism Vox: "Since it's clear no God of Small Things is going to come riding in a white horse, here's our Top 10 things you can do to make your life with autism easier. (Five today; five tomorrow -- and more to come.)" (8/26/09)
"Some doctors are afraid to touch me"
From We Go With Him: "And the discovery of the week is that.............. adults, and many adults, are on the autism spectrum. And that there's just as much a need for specialized services, especially in the area of medical professionals, for autistic adults as there are for autistic children." (8/25/09)
European Working Group on Rett Syndrome 2009 Meeting
From About.com Rare Diseases: "The meeting provides an opportunity to discuss Rett syndrome-related science, to find collaborators for grant applications, and to exchange reagents and ideas." (8/19/09)
Ponyo: A Role Model For Kids With Autism?
From NPR: "She yelled out one-word answers when she wanted something she liked. She'd sometimes repeat what other characters said to her. She thrived on intense, sustained hugs. She wouldn't always listen before diving into something, as it were. Ponyo was literally a fish out of water, trying to learn the norms of human interaction, but not always hitting the mark." (8/19/09)
Alan Jackson's donation is 'Right on the Money'
From Easter Seals Autism Blog: "My job as moderator of the Easter Seals and autism blog rarely takes me to the world of country music, but thanks to the generous donation country music superstar Alan Jackson recently made to Easter Seals of LaSalle and Bureau counties, my eyes (okay, my ears!) have been opened." (8/6/09)
Autism: A Difficulty or a Difference?
From Leading to Learning: "Last night I watched a short documentary about three young adults with autism. ... They were talking about being autistic and what it meant to them. They all denied that their autism was a problem for them. In fact one of them said it was a gift as it allowed her to comprehend things in ways that 'normal' people could not." (8/5/09)
Catlin family seeks more answers on causes of autism
From The News-Gazette.com: "Two days after he got two shots containing five vaccines, Tanner went running up to his dad and spoke his last sentence: 'My name is Tanner, my name is Tanner.' The diagnosis after he stopped speaking: autism." (8/3/09)
AR = DR = HR
From Autism - Change.org: "It is deeply satisfying then that this blog itself will be changing to better reflect the AR = DR = HR equation, as autism-specific blogging merges into broader Disability Rights blogging at change.org in the future. This is As It Should Be." (8/1/09)
Leverage
From Autism - Change.org: "If we want public attitudes toward autism to shift away from medical-deficit models and toward social-strength models, if we want public perception of autism issues to be as human rights issues, then where is the greatest point of impact? The media? The government? Each other?" (7/31/09)
What Doesn't Cause Autism?
From Autism - Change.org: "Now that breast milk is being pointed to as a cause of autism ... one wants to throw down the proverbial gauntlet (if not throw up one's hands) and say what hasn't been suggested as a cause for autism?" (7/30/09)
Floortime: A Breakthrough on Autism Treatment
From Parenthood.com: "An Interview with Dr. Stanley Greenspan on the New 'Floortime' Approach." (7/30/09)
What do Children with Autism Think About?
From Autism Is Not the Boss: "What does my son think about during those times when he's in his own little world? Is he lonely? Is he sad? Is he processing the events of the day? Or is he memorizing again – maybe pii to the 40th decimal or the names of all the American Presidents by state, by party and by hair color?" (7/25/09)
Autism from the inside looking out
From Disability News: "Sarah, who says she has Asperger's syndrome, writes that the post entitled 'The Unvarnished Reality of Autism' failed to acknowledge the perspective of people who have autism and view their lives as worthwhile. 'I feel personally quite hurt by the choice to publish such hateful speech about raising an autistic child,' she said." (7/25/09)
"Real Autism" Is a Tricky Concept
From About.com Autism: "It's unfortunate that we're living through a time of such confusion. I'm betting that, in twenty years, the autism spectrum and the criteria for diagnosis will look quite different. For now, though, 'real' and 'autism' are probably not words that should be linked." (7/24/09)
Reading about autism
From Be a Good Dad: "If you are looking for a good pep talk or a good quick list of things to think about as a parent/relative/friend/teacher of a child with autism, What You Can Do Right Now to Help Your Child with Autism is a pretty good book." (7/23/09)
Autism not tied to bowel movement patterns
From Reuters: "Despite some reports to the contrary, children with autistic spectrum disorders do not have bowel movement patterns that suggest gastrointestinal problems, UK researchers report." (7/23/09)
What Autism Is Supposed to Look Like
From A Room of Mama's Own: "I thought, 'Everyone is going to think I'm some kind of crazy Munchausen Autism by Proxy mama, making up lies about a completely typical child to get attention. Exhibit A: he's a happy kid who enjoyed a party. And that is not part of what people think autism is supposed to look like.'" (7/22/09)
The Autism Corps
From Autism - Change.org: "More people trained to assist individuals on the autism spectrum means that support could be available for individuals in their homes and in their communities, in the settings that they know and are familiar with." (7/21/09)
Recruitment Of Marine With Autism Under Investigation
From Disability Scoop: "A man with autism, whose recruitment into the Marines is now under investigation, pleaded guilty Monday to desertion and child pornography charges." (7/21/09)
'Catch Me If You Can' Autism Style
From Disability Scoop: "A 17-year-old with autism fooled a slew of aviation executives into believing the he was a businessman about to launch a new airline." (7/20/09)
Autistic Lad Says "Catch Me If You Can"
From About.com Autism: "Brilliant and quirky? Or troubled and scary? It really depends upon your point of view regarding a young man with 'a form of autism' who succeeded in bamboozling an entire industry." (7/20/09)
Essay: People with autism deserve respect from academia
From Disability News: "Tyler Cowen, writing in the Chronicle of Higher Education, expresses dismay at the 'dehumanizing ideologies' and biases directed by academics toward people with autism. He asks academics to embrace neurodiversity, develop a respectful language for discussing autism, and move beyond the definition of autism as a disease." (7/17/09)
Children with autism grow up to be adults with autism
From Easter Seals and Autism: "The reporter points out what so many tend to forget. Autism is not a childhood disorder. It never goes away." (7/17/09)
An Easy Way to Make a Big Difference for People with Autism
From Special Needs Truth '08: "Health reform is moving along without a critical component -- assurance that insurance companies will be required to cover autism services. You can help by making two phone calls, sending two emails, and telling your friends about this." (7/17/09)
Unacceptable! Autism Excluded from H.R. 3200 Healthcare Bill!
From Age of Autism: "Whatever your thoughts are with regard to the national health reform discussion, whatever your party politics are, I want you to think about this. Children with autism deserve appropriate health care coverage for their medical condition. Some children in some places have access to that. Most children with autism in most places do not." (7/16/09)
Is Your Child Autistic -- Or Could He Have This Syndrome?
From About.com Autism: "What this means is that children who recover" from autism as a result of dietary intervention may actually be diagnosable with a syndrome that is NOT really autism at all." (7/15/09)
Racehorse promotes autism awareness
From Disability News: "A racehorse named 'Autism Awareness' [competed July 11] in the $700,000 Hollywood Gold Cup Grade 1 racing event." (7/14/09)
News Flash: It's Stressful to Raise a Child with Autism
From About.com Autism: "In a shockingly obvious finding, researchers have discovered that it's more stressful to raise a child with autism than to raise a child with non-autism-related delays." (7/14/09)
Take Action: Ask Michelle Obama to Help Create an Autism Corps
From Squidalicious: "Jennyalice and I have taken the Autism Corps idea one step further: We have created a petition asking Michelle Obama to meet with us, to discuss creating an Autism Corps based on the Teach for America Model." (7/14/09)
What to Expect from an Autism Center Evaluation-Part I
From Autism Is Not the Boss: "I would gladly donate every penny of the gas money I've spent driving my son from one diagnostic center to another if I could find a single, one-stop shop for autism screening!" (7/13/09)
Call congress to support autism insurance
From Left Brain Right Brain, support for the law, but not support for the Autism Speaks commercial that implies ABA will make your kid "normal." (7/10/09)
Autoimmune Disorders in Mothers: More to worry about?
From Autism - Change.org: "A new study published in the July 6th online edition of Pediatrics has found that children whose mothers have type 1 diabetes, rheumatoid arthritis and celiac disease---all autoimmune diseases---could be at up to three times a greater risk for autism." (7/10/09)
Tremendously Successful Travel With Leelo
From Squidalicious: "Here's how we prepared for our boy and his autism to have a successful trip away from home." (7/10/09)
Push For Autism Insurance Mandate Shifts Into High Gear
From Disability Scoop: "Currently 14 states mandate insurance coverage for autism treatment, according to Autism Speaks. Efforts to pass similar legislation in several other states have failed amid concerns from insurance providers about increased costs. There is no federal legislation governing autism coverage." (7/10/09)
Proprioception and the Brain
From Autism - Change.org: "Interesting study on whether there's a connection between 'deficits in motor control, imitation and social function' in autistic children and a 'dysfunction in the neural basis of representing internal models of action' in the July 5th Nature Neuroscience." (7/9/09)
Autism Speaks Makes Push for Insurance Coverage: You Can Help
From Special Needs Truth '08: "Autism Speaks is urging parents and advocates to call Speaker of the House Nancy Pelosi and Senate Majority Leader Harry Red to 'stop autism discrimination' by insurance companies." (7/9/09)
The Autism Corps
From Squidalicious: "We need an Autism Corps, modeled after the Peace Corps and AmeriCorps." (7/8/09)
Applied Behavior Analysis: Educational or Medical?
From About.com Autism: "When ABA is provided as prescribed (up to 40 hours per week of 1:1 therapy), it can cost as much as $70,000 per year. As a result, insurance companies are balking at the cost." (7/8/09)
The Case of Pvt. Joshua Fry
From Autism - Change.org: "21-year-old Joshua Fry is a Marine. He is on the autism spectrum, and his recruiter knew this when he recruited Fry from a group home in Irving, California." (7/6/09)
Beware Autism Headlines
From About.com Autism: "Lack of evidence doesn't stop authors, bloggers and product salesmen from offering you advice on "how to prevent autism during pregnancy." (7/3/09)
"Tidal Wave" of Adults with Autism about to Flood California
From Age of Autism: "Broke California will begin the new decade with crushing debt and wholesale elimination of human services. Meanwhile, President Obama has rankled Congressional Democrats with plans to earmark millions of dollars in NIH funds to find the causes and cures of autism."
Healing and Preventing Autism, a book review
From Root and Sprout: "When I told my son's pediatrician I was reading this book, she shook her head and rolled her eyes." (7/2/09)
Autism insurance gathers momentum
From Disability News: "Experts say that sixteen states and Washington, D.C., have mandates for insurance coverage for autism or other developmental disorders, and momentum is growing. Many self-insured employers are also getting on board, even though they are not subject to the mandates." (7/2/09)
Mother Warriors: The Extended Review
From Squidalicious: "Ms. McCarthy could have been autism's true hope-bearer. ... Instead, she produces books .... about how she and other parents rescued their kids from autism using expensive and time-consuming biomedical diet and supplement methods ..., portrays pre-"recovered" children in a very negative light, and gives parents of newly diagnosed autistic children false hopes." (6/27/09)
Autism and aspergers are essentially the same
From Left Brain Right Brain: "Interesting new study in the upcoming issue of Journal of Autism and Developmental Disorders which examines the historical emergence of the classification of autism alongside the emergence of the classification of Aspergers." (6/27/09)
People with autism need health insurance reform
From Easter Seals and Autism: "Too many people with autism and other disabilities are forced to make major life decisions based on whether their insurance meets their individual needs." (6/26/09)
Autistic Trekdom
From The Morning News: "As I watched this film last Saturday, and Mr. Spock walked onto the bridge with his stiff demeanor and his formal language, my initial reaction was: 'Oh man, that guy is so Asperger's." (6/24/09)
Autism Safety
From Teen Autism: "Managing risk for our children is part of our daily safety routine. We don’t have incidents occurring every day, but we still need to have those risk management efforts in place. And in many cases, there is more that we can be doing, even in our own home." (6/22/09)
Biomed: What It Did and Didn't Do for Us
From Can Mom Be Calm: "The truth is, I can not tell if biomedical treatment is working for me. I really just can't and this is unacceptable to me because we've been at it for almost a year." (6/22/09)
In Landmark Settlement, Insurer To Reimburse For ABA Therapy Since 200
From Disability Scoop: "The move comes in the case of Christopher Johns who filed suit earlier this year after Blue Cross denied claims for applied behavioral analysis (ABA) for his son who has autism because the insurer said the treatment is experimental. Already in May Blue Cross announced that it would begin covering ABA therapy effective July 1." (6/19/09)
Autism, Anorexia Could Share Origins
From Disability Scoop: "Autism seems to have little in common with anorexia. After all, people with autism tend to shun social interaction while those with anorexia seem completely absorbed with securing outside approval. Yet, scientists say, the two disorders could share genetic roots." (6/19/09)
Traits to Cultivate in Children with Autism
From Autism Is Not the Boss: "As a parent, I wanted to gain an understanding of what I could do to ensure my son's success in a neurotypical world. So I asked parents where ever I could find them ... about what they considered to be the most important traits to cultivate in children with autism spectrum disorders." (6/18/09)
Beware the Use of Force
From Autism - Change.org: "Many individuals on the autism spectrum having sensory sensitivities, being touched by a stranger is a potentially sensory-system-havoc-wreaking act, not to mention an intrusive one liable to further aggravate an individual (and to escalate the situation)." (6/18/09)
People With Autism Complete IQ Test Faster, Learn Differently
From Disability Scoop: "People with autism completed a reasoning test 40 percent faster than their peers in a new study. But both groups scored about the same on the test." (6/17/09)
He's got an autistic southern drawl
From Don't Bite the Dog: "Who knew? Jaymes has many fun, amusing, and downright eccentric qualities, and now we can add what one therapist refers to as an "autistic southern drawl" to his list. I don't know why, but that cracked me up. I need to take some video of him asking for a brown crayon, he sounds like he's from Alabama. It's beyond adorable." (6/17/09)
Can a Child Overcome Echolalia?
From Autism Games: "It is not so much that the child overcomes echolalia; it is like if there were 1000 skills that a child would need to talk in complete self-generated, original sentences, a child with echolalia has learned 287 of those skills." (6/17/09)
Do OCD (Obsessive Compulsive Disorder) and Autism Go Together?
From About.com Autism: "Sometimes, special interests are a great source of opportunity. Sometimes they're a serious problem. What's your experience with autism and special interests?" (6/16/09)
Harness Autistic Special Interests for Success
From About.com Autism: "But what if your son were an athlete, spending every extra moment building football skills? How much would you worry? What if he spent hours playing videogames with friends? Most parents are less concerned about these types of "perseverations" among typically developing kids." (6/15/09)
New Autism Safety Program from Autism Speaks
From Autism About.com: "Last week, Autism Speaks announced the launch of their new Autism Safety Project. This is an online resource for parents, first responders, fire fighters and others who may have cause to interact with autistic people under stress." (6/14/09)
In the Community
From Autism - Change.org: "Once upon a time autism was thought to be a rare disorder. Today, so many more individuals are said to be on the autism spectrum that it can feel as if there's an 'epidemic.' In any public setting, there's bound to be someone on the spectrum present and nearby." (6/13/09)
Autism, Activism, and a Voice of Reason
From About.com Autism: "His suggestion: we should focus on participation, not activism." (6/12/09)
Here's Your Chance to Take Part in Research into Causes of Autism
From About.com Autism: "Do you have a child with autism? Are you expecting another baby? If so, researchers are standing by to hear from you! An article in the Wall Street Journal includes an announcement of a new study, to be undertaken by researchers at Drexel University in Philadelphia." (6/9/09)
Autism: Using Spreadsheets for Tracking Behavioral Factors
From the adventures of leelo and his potty-mouthed mom: "There are so many factors that can influence or illustrate how our children with autism are wearing their own skin, including health, toileting, aggressive &/or self-injurious behaviors, sleep patterns, medications, language usage, diet, and school performance. We've used a Google spreadsheet to track those factors." (6/9/09)
Stimming: Self-Stimulating Behavior
From Root and Sprout: "Stimming generally serves one of two purposes: to excite or to calm. Those who are less sensitive to the external world, or hyposensitive, use it to activate their senses. And those who are hypersensitive use it to focus on one particular motion, or sound, to drown out the rest of the world." (6/7/09)
10 Top Tips for Talking to your ASD Teen about Sex
From Spectrum Siblings: "I thought I would finish up the unit on sex and the ASD teen with some tips about the birds and the bees conversation." (6/5/09)
"Epidemic," Bettelheim, Science: Simon Baron-Cohen on Autism
From Autism - Change.org: "The June 3rd Forbes has an interview with Baron-Cohen in which he makes some quite direct statements about topics that keep recurring, including the question of whether or not there's an 'epidemic of autism' and causation." (6/5/09)
The Tie-Dye Project
From Teen Autism: "Make five more tie-dyed shirts and send them out to five ASD kids. When was the last time a fun project had so much meaning behind it? Love, support, and understanding among kids on the spectrum. It%u2019s a wonderful thing." (6/3/09)
No Benefit, Numerous Side Effects For Kids On Autism Drug Celexa
From Disability Scoop: "An antidepressant commonly prescribed to minimize repetitive behaviors in children with autism does not work, according to a study published in the June issue of the Archives of General Psychiatry." (6/2/09)
An Artificial Distinction: Services for Children and for Adults
From Autism - Change.org: "Discussions about services and supports have a way of falling into 'camps' and 'us vs. them' push-and-pulls. And that just hurts the individuals who need the services and supports more." (6/1/09)
That Which Goes Unseen
From Autism - Change.org: "What is seen of a person may only be a small fragment of their lives, and yet others are often eager to judge the whole of a life based on that small fragment." (5/31/09)
Introducing the Autism Treatment Acceleration Act
From About.com Autism: "The bill's title is a bit misleading, since treatment is included in only a small portion of the bill. In fact, the Act would include funding and support for several demonstration projects; public education; a 'voluntary registry' of people diagnosed with autism; a national training initiative and more." (6/1/09)
Top Ten Things About Autism
From Autism Vox: "#3. Blessed silence. Of course I love when my children talk to me. Alex rarely does and sometimes that's a plus. We can sit together in companionable silence without the constant wall of sound you get from some kids." (5/31/09)
Autism Estimate Up 50 Percent In Britain
From Disability Scoop: "As many as 1 in 64 British children could have autism spectrum disorders, according to the most comprehensive look at the prevalence of autism among British children to date." (5/31/09)
Autism Science Foundation blog on Risperdal
From Autism - Change.org: "Autism Science Foundation co-founder Alison Singer posted yesterday on the organization's blog about an 'outrageous' story on CBS News that was heavily critical of Risperdal, an anti-psychotic medication approved by the FDA to treat aggression, irritability and deliberate self-injury in autistic children." (5/29/09)
Musings on the DSM-V Revisions and
From Autism - Change.org: "The 'level' of 'severity' in an individual may very well vary 'across an individual's life span, depending on age, available support, and a huge number of other possible factors.'" (5/28/09)
Thanking Newsweek for providing a voice for people with autism
From Easter Seals and Autism: "Quality of life should be the message regarding autism. Quality of life can be measured by the ability to make choices -- choices about where to work, where to live, how to recreate and with whom to spend time. Given appropriate services and supports, every person with autism can contribute to their life choices." (5/27/09)
Autistic Adults in the News
From About.com Autism: "This week, autistic adults are in the news. It's as if the media and autism blogs have suddenly noticed that adorable toddlers with autism really do grow up to be not-so-adorable adults - with autism." (5/25/09)
Jim Beaver Shares What to Do When Life's That Way
From Parent Dish: "In August of 2003, actor Jim Beaver's life started to unravel. His daughter, Madeline, was diagnosed with autism; two months later, his wife, actress and casting director Cecily Adams, was diagnosed with lung cancer." (5/26/09)
Chicago Tribune Blasts Lupron for Autism as
From About.com Autism: "I had heard of Lupron being touted as a cure for autism, but until reading this four-page article in the Chicago Tribune, I had no idea how widespread its use had become. Quite honestly, I assumed that most parents had the common sense to walk away from something as risky and unproven as a drug created to produce chemical castration." (5/22/09)
One Year Later: Alex Barton
From Autism - Change.org: "But has anything been done at the school and in the school district to prevent something like what happened to Alex from happening again to another child on the spectrum; from any child, period?" (5/22/09)
Psychiatric Drugs Killed Boy With Autism, Lawsuit Says
From Disability Scoop: "A Florida mother is filing a wrongful death suit against a psychiatrist and the owner of a group home claiming that her son died from over-medication while in their care." (5/21/09)
Best Sports for Kids with Autism
From About.com Autism: "'Typical' team sports such as soccer, basketball and hockey may be particularly tough. Individual sports, however, may be just the ticket." (5/19/09)
Erasing Autism
From Newsweek: "Scientists are closing in on the genes linked to autism. So why is Ari Ne'eman so worried?" (5/17/09)
My Kid Has Autism: Now What?
From The Adventures of Leelo and His Potty-Mouthed Mom: "If your child has recently received an autism diagnosis, you're going to want some answers to your questions: Why? What can I do? What does this mean for his or her future?" (5/17/09)
How to Create Great Social Stories
From 5 Minutes for Special Needs: Adapt an existing children's book to create personalized social stories. (5/17/09)
Data on autism and divorce
From Easter Seals and Autism: "Data from the Easter Seals' Living with Autism Study provided us with quantifiable information that families living with autism are significantly less likely to be divorced than families with children without special needs." (5/17/09)
The graying of autism: A brother’s account
From Disability News: "Time magazine carries a portion of 'Boy Alone,' an upcoming memoir by journalist Karl Taro Greenfeld about growing up in the shadow of his autistic brother, Noah." (5/15/09)
Sending Your Child with Autism to College
From Momlogic: "The important thing is not to simply send them off, hoping things will work out -- they still need extra support and preparation, and many colleges are offering special programs for these amazing kids." (5/14/09)
Can All Positive, Intensive Therapies Help Kids with Autism?
From About.com Autism: "There are more types of intensive non-medical therapies available for kids with autism than I can count on my fingers and toes. In a very general sense, these can be broken down into three groups: behavioral, developmental, and 'other.'" (5/13/09)
Recovery from autism
From Left Brain/Right Brain: "Its pretty much a replication of work done in December 2008 by Dr Molly Helt. I mean OK it narrows the recovery band from between 10 to 20% of kids from Helt's figures of 3 % - 25% but that hardly makes it a breakthrough. Just a refinement." (5/12/09)
The Recovery Issue
Fom Autism - Change.org: "Over the past decade, we've seen ABA done very badly (with bad results on my son) and ... very well. We've also some very exasperating interactions with ABA practitioners whose focus was on 'recovering' Charlie and who, when they realized that he was not meeting his 'recovery goals,' suggested ... that we seek services from someone else." (5/11/09)
The Hood
From Teen Autism: "No matter what I do, no matter how many Circles of Friends I try to start, no matter how much I write about autism, no matter how much advocacy I do, there will always be people who will laugh at my son and his different ways." (5/11/09)
When Treatment Goes Too Far: Boy Burned at HBOT Center
From Autism - Change.org: "While some have offered anecdotal reports about the effectiveness of HBOT in 'treating' autism, HBOT is one of many experimental, unproven, biomedical treatments for autism---why is it that families willingly try anything and everything to 'treat' autism? Why put a child's safety and even life at risk in the name of 'treatment for autism'?" (5/3/09)
Just Because I'm Quiet Doesn't Mean I Don't Understand
From Autism - Change.org: "We are not to be discussed in the third person. We are not to be discussed as objects. We are not to be discussed as though we are not really there." (5/2/09)
Autism Awareness Month - So What !!
From Autism Bites: "What about your family? Did they come over to the house against their self-imposed avoidance of your family? No? Huh, really. You mean they didn't offer to watch the kids? Give you a break? Nothing?!? Didn't they know that it's Autism Awareness Month?" (4/30/09)
Some Thoughts as Autism Awareness Month Comes to an End
From 5 Minutes for Special Needs: "But we as a community are fractured. Broken. Split along lines that should not be there; dividing a group that needs to band together to help our children and our friends and family members gather hope and strength to face our special brand of challenges." (4/30/09)
People with autism can 'get a life,' parents say
From Disability News: "In the Topeka Capital-Journal, Rud and Ann Turnbull say their son Jay proved that adults with autism can have purposeful, worthwhile lives if support personnel are in place to help with transitioning from school, housing, employment, social connections and other needs." (4/29/09)
Quiet Advocacy
From Autism Is Not the Boss: "As parents of children with autism, you are by definition, advocates.  Why not take your advocacy efforts further to help others?  Advocacy efforts don't  have to be noisy and confrontational." (4/29/09)
ABA and Neurodiversity: Not So Strange Bedfellows
From Autism - Change.org: "It's something of a cliché, but there's probably as many ways to teach individuals on the spectrum as there are individuals themselves." (4/27/09)
"I am not a puzzle, I am a person"
From Salon: "People with autism don't need to be 'cured,' argues the burgeoning 'autism culture' movement. Not all parents or medical experts agree." (4/27/09)
Google and Autism Society of America Announce Project Spectrum
From Age of Autism: "Project Spectrum is an ongoing initiative at Google working to provide people on the autism spectrum with software and guidance that may help them to express an idea or even develop a life skill." (4/25/09)
Structuring the HOME for Children with Autism
From Special Needs Bliss: "Children with autism are typically accommodated with a great deal of structure in their school environments, but what about the home? Research has shown that our children on the spectrum thrive in settings that are not only organized and predictable but also brimming with visual supports and visual schedules. How can you provide that structure in the home?" (4/25/09)
Guide to Potty Training an Autistic Child
From Be A Good Dad: "Don't rush it. Don't make it a battle. If I could do it all over again, I would have started much later and stayed much, much, much calmer." (4/25/09)
Letter to a YMCA Director
From Autism - Change.org: "We ask, therefore, that the YMCA consider more and new ways to make accommodations for individuals on the autism spectrum, and therefore to find ways to integrate individuals as fully as possible into the life of its community." (4/23/09)
National Autism Awareness Month
From Be a Good Dad: "But if you want to do something for Autism Awareness Month, I would hope that you do something that actually lets you interact with a person with autism either by reading/listening to what they have to say or hanging out with them. Not much will make you more aware of differences and similarities, needs and wants than that." (4/22/09)
Autism Defense Cropping Up Across Country, But Merits Questionable
From Disability Scoop: "In some cases defendants argue that the neurological disorder actually makes them 'insane' at the time of the crime while in other instances defendants are just looking for leniency." (4/21/09)
The Autistic Foodie (and Other Passions)
From The Joy of Autism: "There's nary a moment when I won't find Adam engaged in some new passion. Unlike the so-called 'static' nature of supposed autistic interests and fascinations, I find Adam's interests variable and ever-evolving." (4/21/09)
Book Review: At Home in the Land of Oz
Review of a memoir of growing up with a sister with autism.
Autistic or Spoiled? Can't she be both?
From Spectrum Siblings: "Now it may be true that Mandy has autism (though she doesn't exhibit any of the usual traits). But her mother is creating this notion that because she is autistic, she should be able to do a she pleases with no restraints. This serves no one any good." (4/21/09)
How to Present Autism on Stage?
From Autism - Change.org: "Why should it be assumed that a show about autism should be 'cheerful' or 'uplifting'---why can't it be, perhaps, difficult on its audience and get people to think differently? Need a show on autism be 'touching and heartwarming'?" (4/18/09)
Fed Up With Autism Fighting
From Autism Bites: "Every family is different, each Autistic child is different from every other Autistic child. No one should tell another parent or person with Autism what they should be doing with their life... even if they think they KNOW that family from watching them on TV. ;)" (4/18/09)
Making kids more aware of autism
From Easter Seals and Autism: "It seems so much attention is given to making adults more aware of what autism is -- wouldn't it be good for kids to be more aware, too?" (4/18/09)
Is It Possible To 'Recover' From Autism?
From Disability Scoop: "Some research relying on social skills testing and MRIs does indicate recovery has occurred in some people with autism. However, researchers warn that the number of people who 'recover' is minimal and recovery does not mean that all challenges disappear." (4/18/09)
AMC and Autism Society Partner for Autism-Friendly Films
From About.com Autism: "When your child can't sit still, can't stand the darkness or freaks out when the noise gets too loud, a trip to the movies is simply not an option. That's why AMC and the Autism Society of America have teamed up to provide families with 'Sensory Friendly Films.'" (4/18/09)
Stepping Back
From Teen Autism: "Little transitions - stopping an activity to come to dinner, getting into and out of the shower, a new piece of furniture - can be challenging enough to get through. And they make the big transitions - starting a new school, moving, divorce - seem incredibly daunting. And we have a really big one coming up." (4/17/09)
Autistic Adults are Not Large Children
From Autism - Change.org: "There is a balance to respect: Autistic adults may need support in some traditionally 'adult' areas, but that does not mean that we are children who need others to wow over mundane accomplishments." (4/16/09)
Savantism, IQ, and the Nature of Intelligence
From Autism - Change.org: "There are pluses to focusing on what autistic people can do instead of what we can't. ... On the other hand, focusing too much on savant skills or 'autistic super powers' can be dangerous or dehumanizing if taken too far. Autistic people shouldn't be valued only if they can perform some freakish mental feat to awed spectators." (4/16/09)
The Last Wrap Up
From Autism Vox: "A seder presents a peerless test of getting someone with autism to sit, listen, eat, and otherwise partake of a special family moment." (4/16/09)
Books: How ‘The Horse Boy’ conquered autism
From Disability News: "Officials at Little, Brown & Company,  which released 'The Horse Boy' in the United States Tuesday, say they paid a $1 million advance to Rupert Isaacson before the author and his family left for Mongolia." (4/15/09)
New Book Release -- The First Year, Autism Spectrum Disorders
From Fearless Females: "For all of those just starting their journey and research into autism... this is a must read!! Pass the word around if you know someone who could benefit for this book!" (4/15/09)
Can Horseback Riding in Mongolia "Heal" a Child With Autism?
From About.com Autism: "A father takes his autistic son on a journey to Mongolia, where he meets with shamans and rides Mongolian horses. Over their time in Mongolia, the son 'developed improved language and behavior. He also had a magical connection with horses.' Did the family discover a recipe for healing autism?" (4/15/09)
"Recovery" from Autism: Fantasy and Reality
From Autism - Change.org: "With the publication yesterday of a new book, The Horse Boy: A Father's Quest to Heal His Son---in which a former horse trainer, Rupert Isaacson, takes his autistic son Rowan to Mongolia to ride horses and meet shamans---I suspect the notion of "recovery from autism" will be batted about at least a bit." (4/15/09)
Grade A Questions
From Autism Vox: "I'm helping an undergrad prepare a term paper on 'family intervention' (does that include Merlot?) and its 'positive effects' on autism. The report aims 'to inform people about autism and ways family intervention help it.'" (4/15/09)
Yes, You CAN Teach Autistic Teens How to Make Friends
From About.com Autism: "It seems that the best way to teach autistic teens to be successful social communicators is to break down the rules, and teach them one by one. This is probably common sense to some, but to many the idea of actually teaching social communications techniques as one would teach math or physics may be brand new." (4/14/09)
Arts Both Exceptional and for All
From Autism - Change.org: "From ABC News in Chicago (IL), a story about Johnny Reisel's fantastic cityscapes and art. This is one of those cases where the artwork would be newsworthy for any 10 year old kid, and indeed for many adults." (4/14/09)
I Am Tired Of Autism Awareness Month
From Bella Online: "You will see various members of the autism community standing up for autism, running or walking for autism, they might be bouncing for autism or fundraising for some autism organization for autism, many want to get rid of autism and say they are fighting for autism - why not just accept autism and live with autism." (4/13/09)
Autism spectrum can be difficult for some to see
From WREG: "It's easy to see how a child with autism or Asperger's could frustrate a teacher with limited or no knowledge of the disorder. Problems inevitably arise when autistic behavior is misinterpreted as willful disobedience, something that a child - or parent - can control." (4/13/09)
Visual Supports Maybe Not for All
From Autism - Change.org: "While the use of visual tools for organization, transition, learning, and communication is not to be dismissed (indeed I am the sort who relys on these sorts of things), the black-and-white assumption that visual supports help all people on the spectrum is worrisome." (4/13/09)
Sunday Spotlight
From No Time for Flashcards: "Freak. Weirdo. Oddball. They are all names I'm scared my son may be labeled with. You see, he has an Autism Spectrum Disorder (ASD) and although, or may be because, he is very high functioning he still struggles with simple social graces that most children pick up naturally." (4/13/09)
Advocacy: What Can You Do in 30 Minutes?
From Autism Is Not the Boss: "If you think advocacy is time-consuming or scary,� check out what a mere 30 minutes can accomplish.�It doesn't take a long time to�make a big difference.�You can do it, too!" (4/11/09)
Too Many Meds?
From Autism - Change.org: "Los Angeles Times article (dated April 13) asks if there's been 'too hard a sell'---by psychiatrists and doctors, by manufacturers---to use atypical antipsychotics for disorders 'far less severe than schizophrenia and bipolar disorder -- afflictions such as anxiety, sleep difficulties, depression, attention deficit disorder and autism.'" (4/11/09)
The $0.99 miracle worker « Spectrum Siblings
From Spectrum Siblings: "The product is called 'flour' and to me, it's one of the best inventions in the universe. Let's look at some of the awesome milestones met while Charger and I played with flour." (4/11/09)
Artist w/Autism Creates New Image for Autism Awareness Month
From Winter Ramblings: "DJ has Autism, but he's been getting lots of well-deserved attention these days for his terrific drawings called 'Imagifriends'. One of DJ's newest drawings has been turned into a puzzle in honor of National Autism Awareness Month." (4/9/09)
Again with that urban myth about divorce rate!
From Easter Seals and Autism: "Last year's Easter Seals' Living with Autism Study provided us with quantifiable information that families living with autism are significantly less likely to be divorced than families with children without special needs." (4/9/09)
Toe Walking for Autism Awareness
From Don't Bite the Dog: "Jaymes has his own ideas on how to promote autism awareness yesterday evening. Flyers? Pins? Nah, silly stuff. He'd much prefer to toe walk all around the store making strange sounds to raise awareness." (4/9/09)
Autism Advocacy
From Fearless Females: "I want both: an awareness--an understanding of autism; and an acceptance of autism for the sake of our children -- don't we all? " (4/9/09)
Did Someone Say 'Reversible'?
From Autism Vox: "Alex took a medication once that made him act strange. This happened during a period when he wasn't especially affectionate, and in the middle of the night he turned around in the crib he still slept in at that time and gave me a big kiss on the cheek. This could just be anecdotal, but maybe he takes after his dad and is a friendly drunk." (4/9/09)
Rethinking Cost to Society
From Autism - Change.org: "At the top of many, many articles online about autism, is some statistic about the cost to society of autistic people. This may be a financial cost, or a social cost, or an emotional cost, or some combination of 'costs.'" (4/9/09)
Teaching autistic teens to make friends
From Science Blog: "In a study appearing in the April edition of the Journal of Autism and Developmental Disorders, UCLA clinical instructor of psychiatry Elizabeth Laugeson and colleagues report that in comparison with a control group, the treatment group taking the class significantly improved their overall social skills and interactions with their peers." (4/8/09)
On Target
From Autism Vox: "The lesson here for me: He pulls his shirt up not because he's autistic, but because he's being a wiseass. That makes me feel mad and comforted at the same time." (4/8/09)
Employment: What Works and What Doesn't Work
From Autism - Change.org: "US News and World Report story Teens with autism looking for jobs gives concrete examples of employment approaches that work for people with a wide range of interests and abilities." (4/8/09)
Recreational Inclusion
From Autism is Not the Boss: "What are community inclusion coordinators? They are typically employees of local parks and recreation departments whose main job is to ensure that children with disabilities get what they need to participate successfully in programs that the community offers." (4/8/09)
Inclusion: A Two-Way Street?
From Autism - Change.org: "Making inclusion work takes everyone's efforts----and not everyone in a community is willing, or able (yet), to make it work." (4/8/09)
Discussing the Horizontal Bop with your ASD child: Part 2
From Spectrum Siblings: "Anatomy, particularly private anatomy can be a very difficult topic for the ASD child. Many of us are visual thinkers for whom 'a picture beats a thousand words.'" (4/7/09)
Autism parents' plea: Understand kids' meltdowns
From CNN: "Autism spectrum disorders affect the ability to communicate and interact. Many with autism have repetitive movements like rocking or hand-flapping and become set in their daily routines. Anything unexpected -- even a sound -- can result in major meltdowns." (4/7/09)
A Roller Coaster to Acceptance of a Son's Autism
From NY Times: "I can't help wondering if the past years weren't some heaven-directed scheme meant to humble us and teach us the value of acceptance. Understanding that we couldn't change him had changed us." (4/7/09)
Book Review: Autism Life Skills by Chantal Sicile-Kira
From About.com Autism: "Autism Life Skills by Chantal Sicile-Kira is an interesting read, largely because it's a combination of a memoir, an anthology of essays, and a resource guide." (4/7/09)
Autism and Exile
From About.com Autism: "If exile is among the worst punishments possible, parents of children with autism are living with that punishment - and all through no fault of their own. Perhaps that's one reason why parents group together with such intensity and passion around issues like vaccines, therapies, potential cures and 'neurodiversity.'" (4/19/09)
Wondering
From Autism Vox: The number of autistic children expected to need extensive adult services by 2023 is roughly equal to the population of Minneapolis; most of these cognitively impaired citizens don't vote, can't live alone, or can't work in public places; ... 'the wrecking ball swinging at all levels of social services' may alter what we assumed was the standard care in their future." (4/18/09)
Getting to Know an Autistic Teen
From Teen Autism: "If more people wanted to get to know autistic teens, if more people realized that they have feelings and interests and personalities worth knowing and cared enough to find out how to achieve that, our kids would be a lot happier and so would we. And more people's lives would be enhanced by knowing them. Because, verbal or not, they have a lot to offer." (4/6/09)
UK Autism Postcode Lottery
From Left Brain Right Brain: "For those unfamiliar with the phrase it literally means that depending on where you live you may get good/bad/awful/no services." (4/6/09)
Discussing the Horizontal Bop with your ASD Child: Part 1
From Spectrum Sibilngs: "Educating an NT child about sex can be a daunting task. But when your child has an ASD, and thus misses the social clues he should have learned from peers and does not have the filter to tell him which questions are appropriate and which aren't, the experience can be downright terrifying." (4/6/09)
150 Empty Strollers for Autism - What's Your Opinion?
From About.com Autism: "What's your opinion of this graphic Autism Awareness Day event? Do you feel it's a powerful reminder? Or do you have another perspective on this in-your-face version of performance art?" (4/6/09)
Water Boy
From AutismVox: "Apparently I once said to Jeff there should be an autism hotline, kind of like a suicide hotline. I'm not sure what I had in mind, but I guess it would be a kind of clearinghouse for information as well as a source of support during tough moments." (4/5/09)
Mothers' bereavement does not raise autism risk
From Reuters: "From Severe stress during pregnancy has been proposed as a risk factor for autism, but a new study finds that at least one source of such stress appears unrelated to the disorder." (4/4/09)
Who's Not on the (Bulletin) Board?
From Autism - Change.org: "From looking at the bulletin board, which had the words "Autism Awareness Month" at the top ... you might think that autism is something about people who (because they're on a bulletin board) must somehow be well-known, not something as close as one of your fellow students." (4/5/09)
End Game for Awareness?
From Autism - Change.org: "There was definitely a time when no one had really heard of autism. And there definitely were enormous problems with that. But that time, as a quick google for the "the A word" attests, is long past." (4/4/09)
What do you think about the Autism Treatment Acceleration Act
From Autism - Change.org: "Yesterday saw the introduction of a bill to establish a national comprehensive autism strategy for the entire US, the Autism Treatment Acceleration Act of 2009 (ATAA)." (4/4/09)
Kids, Allergies & Autism, Part I
From Kids and Kiddos: "As the toxic elements build up over time, they can have more severe affects on otherwise healthy kids, such as learning disabilities, nervous disorders, and other brain conditions; and eventually can be life-threatening." (4/4/09)
More on Airline Access
Autism - Change.org: "Today, Manchester Airport UK announced a new guidebook for autistic children and their families to help make the experience of flying to and from Manchester more stress-free. The book can be found and downloaded from the airport's accessibility page." (4/4/09)
April Fools — It’s “Autism Awareness Month” Again
From The Joy of Autism: "I have been thinking for so long now that as much as we have medical and health components dominating the news, we should have a show on how society views difference (which would include disability) and has medicalized people who are different from whatever norm has been established at any particular point in our history." (4/4/09)
Looking For a Few Accommodations, No Matter What Your Age
From Autism - Change.org: "The number of children estimated to need 'extensive adult services by 2023' totals 380,000, a figure which 'roughly equal to the population of Minneapolis' according to Davis, who especially highlights the need for trained workers to support adults who require such services." (4/5/09)
The Somali Autism Rate in Minneapolis: What does it mean?
From Autism - Change.org: "In Minnesota, children do not need a medical diagnosis of autism to qualify for special education programs. Criteria for an autism diagnosis by a school evaluator can vary; school districts might give a child an autism diagnosis with a view to ensuring the child gets sufficient educational and other services." (4/2/09)
What Can You Do to raise Autism Awareness?
From Spectrum Siblings: "Today, April 2nd, is apparently World Autism Awareness Day, which is a part of Autism Awareness Month. Other than hang up fliers and wear the T-shirt, you might be looking for somethings you could do to raise autism awareness/understanding/tolerance." (4/2/09)
Getting Off the Pity Pot
From Autism - Change.org: "As 'world autism awareness day' and 'autism awareness month' bombard us with fundraising requests and panicked images of 'innocent children' or the 'bravery of those who overcome autism,' remember that the path to eliminating these destructive stereotypes has been walked before." (4/2/09)
Autistic winemakers crafting fine vintages in Japan
From CNN: "The staff of this unique winery is made up of developmentally disabled and autistic people. More than 100 developmentally disabled people work to create Coco Farm and Vineyard's wines." (4/2/09)
The Autism File Campaign: California Moms
From Age of Autism: "Autism File Magazine is running a campaign featuring strong, beautiful women also known as Autism Mothers." (4/2/09)
Commentary: I was the 'queen of denial' on autism
From CNN: "Actress and producer Didi Conn played Frenchy in the films 'Grease' and 'Grease 2' and is a celebrity spokesperson for the advocacy organization Autism Speaks." (4/2/09)
What Don't You Know About Autism?
From Autism - Change.org: "Time and time again in the past decade since my son was diagnosed with autism, I've thought I knew 'this is just so' about autism, about autism in my son, and been proven wrong." (4/2/09)
April Is National Autism Awareness Month
From About.com Children's Books: "One of the benefits of National Autism Awareness Month is the number of resources that are available at bookstores each April. That's how I found Ian's Walk: A Story About Autism, a picture book that I recommend for children ages 6-10." (4/3/09)
Autistic Partygoer
From Cookie: "The author and his autistic son would love to come to your kid's birthday, thanks. Here's how to make everyone feel right at home." (4/3/09)
Awash in Autism Awareness
From the adventures of leelo and his potty-mouthed mom: "My son and our family and his peers need more than your awareness; we need your acceptance. For that to happen, for us to get beyond the theoretical and the puzzle ribbons, you and my son have to get to know each other." (4/3/09)
Why We Stopped Going to Toys 'R' Us
From Autism - Change.org: "I'd suggest that Toys 'R' Us, if it's serious about being 'autism-friendly,' rethink the big box design and offer ways to sensitive toy-shopping to the sensory-challenged. Something has to be done about the glare of the fluorescent lights and the sheer overwhelmingness of being surrounded by 'so much.'" (4/3/09)
Elliot Sadler's Autism Awareness Helmet To Be Auctioned
From Autism and the World Around Me: "Elliot Sadler will be taking on the Texas Motor Speedway this weekend with an autism awareness helmet. The helmet will be auctioned off at the end of the month, and will benefit the Hermie and Elliott Sadler Foundation and other autism related charities." (4/3/09)
ASD in your SD
From Spectrum Siblings: "Ideas for raising Autism Awareness in Schools" (4/3/09)
For Conversation Hogs, Help May Be On The Way
From Disability Scoop: "People with autism are known for unknowingly dominating conversations. But what if they could visualize conversations in real time in the hope of learning to balance the dialogue?" (4/1/09)
Prevalence Of Autism Among Somali Immigrants Confirmed
From Disability Scoop: "There are significantly more Somali preschoolers receiving services for autism as compared to other ethnic groups in Minneapolis schools, according to report released Tuesday. But the reason remains unclear." (4/1/09)
Against Isolation
From Autism - Change.org: "What especially troubled me about this whole incident was that students were made to judge another student and were, in effect, set in opposition against another student. That student, Alex Barton, was literally isolated when he was cast out of his classroom. But the isolation was also social and psychological." (4/1/09)
April Fools Day and Autism Awareness Month
From About.com Autism: "Very wisely, the creators of World Autism Day chose April 2 and NOT April 1 (April Fools Day) for their celebrations. The news headlines today would have been tough to compete with. Today - ta da! - yet another possible cause for autism has been announced - this time, it's vinyl floors." (4/1/09)
Autism Awareness Month: Turning the Tide
From Adventures in Autism: "How bad do things have to get before the general population takes to the streets and shouts NO MORE! If one in 100 children were going blind or being kidnapped there would be rioting in the streets if the government declared April 'Blindness Awareness Month' or March 30 'World Kidnapping Acceptance Day.'" (4/1/09)
Homemade Advocacy
From Autism - Change.org: A toy catalog brings back memories. (3/31/09)
We Are All Unique
From Life With Joey: "Here comes Autism Awareness Month. Let's work hard to bring in real awareness of the uniqueness of all individuals, including autistic people. Respect for everyone is key to a bright future for all of us." (3/31/09)
The Hypocrisy of Airline Access
From Autism - Change.org: "American Airlines may have made some headway into supporting diversity and inclusion for some, but definitely not for all. Airports, airlines, air travel in general has become increasingly less accessible." (3/31/09)
Autism Awareness Day Calendar Published
From About.com Autism: "Lenny Shafer, publisher of daily Shafer Report roundup of autism news, also publishes a monthly autism calendar. This very useful product is provided free of charge to the autism community, and lists events by state and country." (3/30/09)
Taken Down.
From My (Un)Controlled Chaos: "Autism kicked my butt today. Really. Whomped me good. And I don't like to admit defeat." (3/30/09)
Would You Have A Baby Like My Son?
From Autism - Change.org: "I'd hesitate to issue a blanket decree that people with children who have 'something' should not, ought not, have other children. Families differ in the resources---financial, emotional, and more---that they have to draw on in raising a child with more needs than many." (3/30/09)
Kareem Dale on the Special Olympics, IDEA, Autism
From Autism - Change.org: "The 'overall integration and inclusion of people with disabilities into the administration' is commendable and necessary. In the wake of the President's gaffe, here's hoping that there can be renewed and greater focus on the needs of individuals with disabilities and greater understanding." (3/29/09)
The Monster Inside My Son
From Salon: "We cannot solve this problem by hiding it, the way handicapped children themselves used to be tucked away in cellars. In order to help the young men who endure this rage, someone has to be willing to tell the truth." (3/27/09)
The Nectar of Life: Fostering Special Interests
From Autism - Change.org: "For many autistics, success often blooms where learning styles and special interests go hand-in-hand. Highlighting and nurturing individual autistic interests are key to fostering self-determination." (3/27/09)
Growing Up, Bigger, but Violent?
From Autism - Change.org: "I think we have to be very careful at formulating too close a 'link' between violence and autism. We need to be wary of even suggesting that there's a direct connection of the two, while not hesitating from talking about violence, aggression, and the like." (3/27/09)
Growing up fast
From Left Brain Right Brain: "What I'm saying is that the truth about autism is not one persons agenda but a reality that autistic people experience every day. Most of these people are nice and a minority aren't. Some commit crime. The same is true of bipolar people, gay people, NT people, chinese people etc etc." (3/27/09)
There is Eloquence in Darkness
From Autism - Change.org: "A large percentage of autistic individuals are in need of appropriate education, acceptance and integration, opportunity, legal protection, housing, employment, and quality health care. We are thankful to those who join hands with us." (3/27/09)
I Wish I Could Stop Fussing
From Autism Is Not the Boss: "I wish I could stop fussing over my son, but I can't.  Between the shhhing and the how-are-you-feelings and the can-I-get-you-somethings, I am aware that I am fawning over my only child.  And it isn't good for him." (3/29/09)
Sensory Issues and Autism - What Works?
From About.com Autism:"If you have a child with autism, you've probably noticed that he has a tough time managing sensory input. He may over-react to light or noise. He may feel the need to slam against furniture or twirl in circles." (3/29/09)
Book review: Julie L. Coe’s “The Friendship Puzzle"
From Easter Seals and Autism: "I just read a really nice book: The Friendship Puzzle, Helping Kids Learn About Accepting and Including Kids with Autism. The book was written by Julie L. Coe, inspired by Jennifer Maloni, and illustrated by Sondra L. Brassel. These collaborators are all moms, some have children with autism and some have typically developing children." (3/27/09)
Empowerment: Where Do You Get Your Information?
From Autism - Change.org: "So why do we just accept any old information, from any old source, about things we may not know as much about such as autism, deafness, or quantum physics? Is it because we are easily overwhelmed? Is there just too much information to sort through?" (3/26/09)
Your Plans for Autism Awareness Month?
From About.com Autism: "April 2, World Autism Awareness Day, kicks off - rather weirdly - with the head honchos at Autism Speaks (Bob and Suzanne Wright) ringing the starting bell at the New York Stock Exchange. I suppose that the ups, downs and anxieties of the Dow are a reasonable metaphor for life on the autism spectrum.... or not??" (3/26/09)
I Love Sonchai Yoosabai
From Adventures in Autism: "Sonchai is a firefighter in Thailand who put on a Spider Man costume to rescue an autistic boy from a third floor ledge. I love it when people get our kids." (3/25/09)
Diagnosis Made a Difference, But Drugs?
From Autism - Change.org: "I'm always of at least two minds on the topic of drugs for "treating" autism. My son takes medication (Risperdal and Zoloft) and these help him in some, albeit limited, ways. Medication can be helpful but I think we have to be wary of thinking that there might be some magic pill for autism." (3/25/09)
Thriving Autistics in Utah: Could Tight Families Be the Reason?
From About.com Autism: "The results of this study are not hugely surprising, but they are suggestive. For example, they may suggest that the usual approaches to autism treatment - which include 40 or more hours of therapy per week by non-family members, usually outside the home - may not be the most effective way to ensure LONG TERM outcomes." (3/25/09)
Accept Difference. It's Time.
From Autism - Change.org: "What if there were to be an Autism Geographic magazine? I can only imagine the excitement of collecting such a periodical. Inside, there would be autistic people worldwide, wearing all sorts of facial expressions, and doing all sorts of different things." (3/24/09)
Why is This Year Different?
From Autism Vox: "After a number of semi-disastrous Passover seders, I'm loaded for bear. I'm planning like mad, and I'm boiling over with ideas." (3/24/09)
Alex Barton's Tie Dye Project
From A Room of Mama's Own: "Alex has tie dyed five shirts and is mailing them out to other children with ASD and related needs. When a child receives a his or her shirt, that child will then make five shirts of their own to send to five other children with autism." (3/24/09)
Faces of Prosopagnisa
From Autism - Change.org: "Prosopagnosia (face blindness) is difficulty in recognizing people by their faces, even people who are well known such as a parent or spouse. Many people on the spectrum report prosopagnosia and there are claims that prosopagnosia is more prevalent in the autistic population than it is in some other groups." (3/20/09)
Preparing for When I'm Not There
From Autism - Change.org: "A 12-year-old boy on the autism spectrum 'suddenly became violent' at his school in Tennessee, is handcuffed, arrested, charged with assault. I read about this and think: My son's autistic, he's almost 12, 'behaviors' are something his teacher and Jim and I talk plenty about and help my son to work on." (3/19/09)
The Importance of Proper Support
From Autism - Change.org: "I love my son and I would not want him any other way. He certainly is the joy of our life, and he helps us discover life in new and entirely unexpected ways every day. But still, life with a very severely affected autistic child is not always easy." (3/19/09)
Success Stories and Autism: What Are You Hoping to Read?
From About.com Autism: "According to a poll I ran a few days ago, the #1 area of interest among readers of this site is... success stories from parents and adults on the spectrum. Yet according to my stats, the actual success stories available on this site are among the least read." (3/18/09)
An Outbreak of Autism, or a Statistical Fluke?
From the New York Times: "Autism is terrifying the community of Somali immigrants in Minneapolis, and some pediatricians and educators have joined parents in raising the alarm. But public health experts say it is hard to tell whether the apparent surge of cases is an actual outbreak, with a cause that can be addressed, or just a statistical fluke." (3/17/09)
Questions About Chelation's "Safety"
From Autism - Change.org: "The March 13th News Channel 5 raises concerns about chelation after the death last year of 6-year-old Anna Starr, who had epilepsy." (3/17/09)
Introduction
Jeff Stimpson, author of Alex: The Fathering of a Preemie and Alex the Boy, starts blogging at Autism Vox with this introduction. (3/12/09)
Autism and Violence: Is Fear of Autism Harming Our Children?
From About.com Autism: "Autism continues to be a mysterious disorder. Some people with autism are clearly self-injurious, and some are aggressive. Television and video images of people with autism often include images of aggressive behavior. This, coupled, with the recent murder stories, seems likely to raise walls - making inclusion and social success even tougher for our kids." (3/16/09)
The Dark Side of the ADA
From Autism - Change.org: "The idea of trying to weasel around the ADA and causing more discrimination in the process is disturbing. Part ignorance (in the case of employers thinking accommodations will cost them a lot or that they won't be able to discipline an employee) and part seriously broken systems. (3/12/09)
Some thoughts on emotional intelligence
From Spectrum Siblings: "Emotional Intelligence development has five levels in the individual with ASD." (3/13/09)
Hyperbaric Oxygen as a Treatment for Autism: Let the Buyer Beware
From About.com Autism: "Could HBOT actually be a useful tool for treating autism? It's absolutely possible. But until Dr. Rossignol's work has been replicated by researchers with no personal stake, with funding that comes from a neutral source, I'd recommend extreme care in getting involved with the treatment." (3/14/09)
Autism and Empathy
From Autism - Change.org: "It's become a given in popular culture that autism 'means' a person lacks empathy and emotions. But this idea is not present in the actual definition of autism, and neither is it universally accepted by autism researchers nor is it consistent with the first hand experiences of autistic individuals." (3/15/09)
Not Prepared: Criminal Justice and Developmental Disabilities
From Autism - Change.org: "The criminal justice system is, it's acknowledged by all, not prepared or able to handle cases involving individuals with developmental delays. So we need to do what we can before things happen." (3/15/09)
Peer Support Groups
From Autism - Change.org: "The word 'peer' ... is defined as 'a person who is equal to another in abilities, qualifications, age, background, and social status.' Thus it has always seemed curious to me that the word 'peer' is used to refer to those 'typically developing' individuals who clearly are not considered equal with autistic individuals." (3/16/09)
Being a Translator for a Child with ASD
From Autism Games: "One role that parents and other adults need to play for a child with ASD is the Translator. A translator notices when communication is breaking down and finds a way to provide information to the two people who are communicating." (3/11/09)
Could Facebook Cause Autism? Time to Panic!
From About.com Autism: "According to a interview published last week in the UK's Daily Mail, Oxford neurologist Lady Susan Greenfield is seriously suggesting that too much time spent interacting by texting on the computer can actually cause autism." (3/11/09)
ABA, Lovaas, and Autism Acceptance
From Don't Bite the Dog: "It's our job as parents of any kids, autistic or neurotypical, to give them the skills to function in the community. I guess it's a balancing act, accepting your child for who he is vs. wanting to make sure he can go out in public without hurting himself or someone else." (3/10/09)
Autism And Divorce
From Left Brain Right Brain: Is that 80 percent divorce rate for parents of children with autism an urban legend? (3/9/09)
Judge Tells Insurer To Prove Behavior Therapy Is Experimental
From Disability Scoop: "The order comes as the court considers a lawsuit filed by the father a boy with autism. The father, Christopher Johns, says that Blue Cross Blue Shield of Michigan denied claims for his son%u2019s ABA treatment because the method is experimental. Johns is seeking class action status for families with similar claims." (3/9/09)
It's Official: Pediatricians + Autism = Clueless
From Age of Autism: "According to a current article in Pediatrics ... most pediatricians report a 'lack of self-perceived competency' in treating children with autism; yet ironically, the premise of the article states 'primary care physicians can enhance the health and quality of life of children with autism by providing high-quality and comprehensive primary care.'" (3/7/09)
Autism - Change.org: Easter Seals Living with Autism Survey
From Autism - Change.org: "The ... percentages come from the perceptions and concerns of parents, not a survey of concrete outcomes for adults on the spectrum. In other words it is not a 'fact' that only 9% of all autistic people have a life partner, it is that only 9% of all parents surveyed feel that their child will have a life partner in adulthood." (3/7/09)
Violence among autistic rare, expert says
From Ohio.com: "The teenage autistic son of Kent State University professor Gertrude Steuernagel was charged with her tragic beating death last month. ... But an expert on the disorder says this type of violence is rare, and as diagnoses of autism continue to rise, there are other pressing issues to focus on." (3/7/09)
Jaymes Vs. Big Pharma
From Don't Bite the Dog: "You can tell when he's off the meds. I'm not pleased. I finally find the right med, the right delivery method.. And he won't flippin' wear it! How is that fair? YEARS of trial and error with the meds, there has got to be some way to make this work." (3/7/09)
Keepon the Robot Interacts without the Overload
From Autism - Change.org: "Autistic people aren't lacking the ability to comprehend other minds or without social capacity or motivation as some theories suggest, but are having difficulty making sense of the intensely complex wash of social information found in more human social partners." (3/6/09)
Stimulus Funding for NIMH Challenge Grants
From Autism - Change.org: "15 priority research areas are listed that "focus on specific knowledge gaps, scientific opportunities, new technologies, data generation, or research methods that would benefit from an influx of funds to quickly advance the area in significant ways." Several either mention autism directly, or autism-related research." (3/6/09)
When Talking Is a Problem
From Teen Autism: "I spend at least half my time anticipating inappropriate things that Nigel could say and then explaining to him that it's not okay to say them. Saying inappropriate things can be a huge problem for the verbal autist, even a liability." (3/6/09)
Super(market) Advocacy
From Autism - Change.org: "When you see a child 'misbehaving' in public, it's not that the child is 'being bad' and that her or his parent isn't 'doing their job' -- the child could well be on the spectrum and the parent is doing everything they can possibly think of, and just settling for a hasty retreat to the car." (3/6/09)
Can a DVD Teach Emotions?
From Autism - Change.org: "The report from my reviewer? Phlegmatic, as in, Charlie watched several minutes and then was up and gone. What I'm offering here is not a proper, and certainly not an objective, review of The Transporters, but a record of what happened in our household after I put the DVD into my computer." (3/5/09)
Autism Bill debated in Parliament
From The National Autistic Society: "Autism was debated for four hours in Parliament on 27 February 2009, with a full examination of the Government's recent commitment to improving the lives of both children and adults with autism in England. This parliamentary time and support for autism from over 100 MPs is unprecedented." (3/5/09)
Ernie Els, Dan Marino Team for Autism
From About.com Autism: "Ernie Els and Dan Marino are both world-class athletes. And it turns out they have something else in common: they both have kids with autism. Now, they're working together to provide funds and support for autism-related research and programs." (3/4/09)
"Ben X" and Bullying
From Autism - Change.org: "The Belgian movie Ben X got a mixed review from from the Herald (WA). The main theme of the movie is school bullying of an AS teen." (3/4/09)
Physicians Feel Ill-Equipped To Treat Autism, Survey Says
From Disability Scoop: "Barriers include lack of care coordination, issues with reimbursement for treatment and too little physician education. Plus, physicians say, patients are using complementary alternative medicine and families are skeptical of traditional medicine and vaccines, according to the survey." (3/3/09)
The MET Gene: Autism & GI Problems
From Autism - Change.org: "Researchers at the University of Southern California (USC) and Vanderbilt University have found that, when a specific gene variant, the MET gene, is disrupted, this may 'contribute to a syndrome that includes autism and co-occurring gastrointestinal dysfunction.'" (3/2/09)
Bookstore owners aim to help kids with special needs
From NJ.com: "Maplewood bookstore owner Jonah Zimiles doesn't care if his books get bent, ripped or torn. That's because Zimiles knows how tough shopping trips can be with his 13-year-old son. Daniel, who was diagnosed with autism 10 years ago, often tears through the aisles, yelling and grabbing at merchandise." (3/2/09)
Heroes for Autism Event Scheduled for April 19
From Watching Heroes: "Members of the cast and crew of Heroes will be taking part in the upcoming charity event Heroes For Autism.  The charity event will feature photography from the cast and crew of Heroes and artwork from members of the autistic community." (3/2/09)
A year later, Els relieved to talk about autism
From USA Today: "'people coming out and talking about it,' Els said. 'It's amazing how big a problem it is. You don't know it until you get involved.'" (3/2/09)
Autism Alert Cards and Safety
From Autism - Change.org: "Ensuring safety is a systems issue; the problem does not reside in any single part of the system alone, so the solution likely won't either." (3/2/09)
Alex and Advocate
From Hope-Ability: "Wrestling Autism raises money for the National Autism Association. The NAA offers information and support for those affected by autism. Alex is the official spokesperson for wrestlingautism.org. Alex says: 'Wrestling Autism is a great fundraiser for kids like me who are wrestling with autism.'" (2/28/09)
Envelope Stuffing Isn't Where It's At
From Autism - Change.org: "There's a serious need to rethink the content and the form of educating older students on the spectrum and adults requiring such; to reconsider what is 'basic' not simply for 'daily living skills,' but for living." (3/1/09)
Sensory Films Score One for Autistic Kids; Adults Ignored Again
From Autism - Change.org: "But, of course, these 'sensory films' are all for children. Because adults may not have sensory issues? Because adults don't capture the public's heart-strings? Because no one is representing the interests of adults in the development of these programs? Because--why? Who knows, but it's there again." (2/28/09)
Life Skills Bridges and Gaps: The Other Side of the Story
From Autism - Change.org: "Before assuming that improved life skills are a good thing for a person on the spectrum, it's important to consider whether there would truly be an increase in quality of life--or if it's just trying to force someone with no head for motors and engineering and a hatred of grease to work on their own automobile engine." (2/27/09)
Knock, Knock ...
From 5 Minutes for Special Needs: "Something that is still sometimes hard to understand is stimming. You know, self comforting or regulating behaviors. The zoning out. Retreating. Being in his own little world. I hate all those terms, but you know what? They happen. They're part of Autism and even if I don't always understand them, they serve a purpose." (2/27/09)
Millions For Autism In Obama Budget Proposal
From Disability Scoop: "There is $211 million allotted for autism research, screening, public awareness and support services within President Barack Obama's budget proposal, according to an outline released Thursday." (2/27/09)
Judge Considers Suit Against Blue Cross Over Autism Treatment
From Disability Scoop: "A Michigan father is seeking class action status for his lawsuit against Blue Cross Blue Shield of Michigan claiming that the insurer should cover behavior therapy for children with autism. At issue is whether or not behavior therapy such as applied behavioral analysis (ABA) is scientifically based or experimental." (2/27/09)
The Transporters Excerpt
The DVD series "The Transporters" helps children with autism learn about emotions. Human faces are transported onto trains and boats and other predictable vehicles to help children focus on their expressions. This excerpt is from the episode "Barney's Special Day"
Toys "R" Us and Babies "R" Us Launch Campaign for Autism Speaks
From About.com Parenting Preschoolers: "If you find yourself in Toys "R" Us or Babies "R" Us over the next few months, you'll have the opportunity to make a donation to Autism Speaks, a national organization that works to increase awareness of autism spectrum disorders. Through May 1, you can donate in any of the 800 "R" Us stores nationwide or online." (2/26/09)
Editorial Opinions on the Tasering of a 14-Year Old with Autism
About.com Autism guide responds to an editorial that suggest tasering such a student now might prevent future incidents. (2/26/09)
The Languages of the Arts
From Autism - Change.org: "In Autism and the Myth of the Person Alone, Sue Rubin writes, 'not all communication is best served through speech. Art and music are great examples of languages that do not have to be spoken to be conveyed.'" (2/26/09)
Huh. I Guess You Never Know.
From A Room of Mama's Own: "So, my child -- who is supposedly obsessive in his interests and rigid in their execution, who has often shown he fears change and newness -- participated, with no prompting and at his own request, in a non-preferred activity in an unfamiliar location." (2/24/09)
TLAs like ASD, ADD, and DSM
From Autism - Change.org: "One of the focuses of the DSM-V Neurodevelopmental Disorders Work Group is whether the mutual exclusion of ADD/ADHD and ASD should remain or be lifted. Currently a person can not, according strictly to the letter of the DSM, be diagnosed with both neurodevelopmental disorders at once." (2/24/09)
Why "Doing Your Own Autism Research" Is Tougher Than It Sounds
From About.com Autism: "When it comes to autism, 'doing your own research' is great way to wind up completely overwhelmed, and even more confused than you were when you started out." (2/23/09)
In It Together (Like It Or Not)
From Autism - Change.org: "Too often---in regard to school services and in the search to get services, from respite to information about Medicaid waivers to various programs---things get stalled, and things don't happen, because of a bureaucratic impasse." (2/23/09)
Life-Changing Benefits of Diagnosis
From Autism - Change.org: "For many, especially those who have experienced misdiagnosis or who were diagnosed after the first 10 years of life, the feeling accompanying the correct ASD diagnosis is not one of apocalypse and horror, but of revelation and profound relief." (2/23/09)
Would I Cure Him?
From BeckiYagh: "Some days I want a cure and I want it all to be picture perfect, but then I look at my boy and I see who he is and well, he is who he is because of what he is - his having Autism has shaped him. He wouldn't be the same Bug without it." (2/22/09)
Rubber Duck Games
From autism games: "There are as many games to play with Rubber Ducks as there are variations on Rubber Ducks." (2/22/09)
Learning: A Process of Discovery
From The Joy of Autism: "The bottom line is this: autistic people learn. They discover. They have their own path. I want this game for Adam. It has no set conclusion. It is open ended. It enables him to keep discovering, as does his wonderful school. He can play this with any member of his family or his friends." (2/20/09)
Does Your Child with Autism Learn Through Imitation?
And if not, why is everybody so hot for inclusion? From About.com Autism. (2/20/09)
Stopping Child Abuse "Too Political" for Autism Speaks
That's what the organization told Alex Barton's mother, acording to an Autism - Change.org interview. (2/20/09)
Autism Memoirs: Your Opinion? Your Favorites?
From About.com Autism: "Do you enjoy reading autism memoirs? Which ones have you enjoyed? Which did you find not-so-enjoyable? Do we need any more autism memoirs? Share your opinions!" (2/20/09)
New Medication Ineffective for Autistic Symptoms
From About.com Autism: "What this means, sadly, is that the only drug on the market which has FDA approval to specifically treat autism is risperdal - a medication which, like many others, can have problemmatic side effects. In addition, risperdal is only useful for a relatively small number of people overall." (2/19/09)
Criminal Justice System and Developmental Disabilities
From Autism - Change.org: "I haven't been able to stop thinking about the sad, sad case of Sky Walker. Since earlier this month, he has been held at the Portage County Jail, on a $2 million bond for two charges, one of which is the attempted murder of his mother, Gertrude Steuernagel." (2/18/09)
Dreams Can Change
From Autism - Change.org: "Parents often speak of dreams dashed and lost on hearing that their child has been diagnosed with autism. But over the years, from the times when I couldn't imagine what life with an older Charlie, 'still' in special ed and 'still' autistic, would be like, I've found plenty to keep dreaming about." (2/18/09)
Money Alone is Not Enough for Successful Services
From Autism - Change.org: "$500 million may have been put in the stimulus for Vocational Rehabilitation, but will that really help anyone with a disability get a job? Money is only one piece of a successful service." (2/18/09)
US College Programs for Autistic Students
From Autism - Change.org: "There are ... autism-specific programs to enable students on the autistic spectrum to succeed at college. Here's the list I've been keeping for about year." (2/18/09)
Simulations and Analogies for Understanding Autism
From Autism - Change.org: "John Muir Elementary School in Washington took a creative approach to teaching (typical) students about disabilities. A series of simulations were set up to enable typical students to experience what it might be like to be hard of hearing, dyslexic, or autistic." (2/17/09)
Autism and advocacy: are parents always right?
From About.com Autism: "Just to get my week going with a bang, I thought I'd blog a bit about a subject that's been under my skin for quite a while. That is - the assumption by so many parents that mom and dad, because they ARE mom and dad, must know exactly what their child with autism needs." (2/16/09)
Valentines galore for loved ones with autism
About.com Autism gathers heartfelt messages from family members of children with autism. (2/14/09)
Language and ASD Diagnosis
From Autism - Change.org: "An individual might be able to speak with a large vocabulary, but may not yet know all the meanings or functional uses of words. Many of my friends have children on the spectrum who are hyperlexic and can read beyond their age level, but don't seem (yet) able to comprehend all about what they're reading." (2/14/09)
That post I've been meaning to write
From Don't Bite the Dog: "It's chilling to think that a child this woman devoted her entire life to, even as those of us with younger kids with autism now are, ended up killing her. ... I can only imagine the terror he feels, not understanding where he is, why he's being treated this way, where his mother is, and just wanting his routine back." (2/14/09)
They're Autistic--and They're in Love
From Glamour: "Lindsey Nebeker and Dave Hamrick each used to wonder if they'd ever find lasting love. Here's how they came together -- and how, side by side, they face the world." (2/13/09)
Who Wasn't Watching?
From Autism - Change.org: "Flabbergasting to read about Jasmine Colman, a 5-year-old girl with Asperger's Syndrome and epilepsy, who was found wandering outside school grounds after crossing a busy street. Jasmine lives in Woodridge, south of Brisbane, in Australia." (2/13/09)
Insurer Kaiser Sued For Declining Therapy For Kids With Autism
From Disability Scoop: "The suit says that Kaiser Permanente's Kaiser Foundation Health Plan pays for speech, occupational and physical therapy, but not when the individual is diagnosed with autism." (2/12/09)
It's Just Too Close
From Autism - Change.org: "[Trudy] Steuernagel, a professor of political science at Kent State University, died last Friday from injuries from a beating by 18-year-old Walker. Walker, who's described as "severely autistic," is now being held on a $2 million bond of two charges, attempted murder of his mother and felonious assault on the police officer who found him in the basement." (2/12/09)
Relieving Symptoms of Rett Syndrome
From Autism - Change.org: "The February 9th Telegraph (UK) reports on the use of a growth hormone that, when injected daily into mice with symptoms similar to Rett Syndrome in humans, alleviated some of the symptoms." (2/11/09)
There Is A Better Way
The Joy of Autism: "I am very proud of those of us who step out and take the risks we need to take in order that we achieve a better and fair education for our children and an equal treatment from others." (2/11/09)
Nature or Nurture?
From Autism - Change.org: "Why does it seem so important, so crucial, so pressing, for some to emphasize and state that autism 'happened' to them as the result of some external force? Why such a search to locate autism's causes outside and beyond the parents? To say that one's autistic child is totally and utterly different from one; that autism is some anomaly." (2/10/09)
Hug Me Tight: Grey's Anatomy and Autism
From The Karianna Spectrum: "Viewers of Grey's Anatomy not otherwise exposed to autism may think that Dr. Dixon is an accurate portrayal - and that is hurtful, both for the people in their midst who may benefit from a label, and for those who they meet if they know the label before they get to know the person." (2/9/09)
Pride and Self-Prejudice
From Teen Autism: "But at the end of the day, when you're fourteen and you just want to be like everybody else, I guess it's hard to be 'autistic and proud.'" (2/6/09)
Discovery could lead to new autism treatment
From Science Blog: "A Brown University research team has discovered something in the brain that could serve as a target for future autism and mental retardation treatments. Discovery of the novel Fragile X granule is detailed in the Feb. 4, 2009, issue of the Journal of Neuroscience." (2/6/09)
Autism 911: $20,000 worth of therapy
From About.com Autism: "According to today's CNN article "Teen's family transformed after autism intervention," all is now well in the Bilson household. 13 year-old Marissa's terrible behavior is now manageable - thanks to one week's worth of therapy which would have cost the family $20,000 out-of-pocket had they not agreed to be televised." (2/5/09)
Guilt, misconceptions, and the astonishing costs of autism therapy
From About.com Autism: "The CNN program 'Autism 911' highlighted a program called Crisis RESQ: Restoring Everyone's Sanity Quickly, offered by an organization called Autism Partnership. ... The cost for RESQ is approximately $2,500 a day. Insurance is not accepted." (2/5/09)
Autism in Australia
From Autism - Change.org: "There has been an increased focus on autism in Australia in recent years to the point of it becoming an federal election issue. Autism has been portrayed as a crisis, an epidemic, a puzzle, an over diagnosed condition, a struggle and a financial burden for families, a scientific curiosity as well as the root of special and extraordinary talents." (2/5/09)
The Long Haul: On "Autism 911"
From Autism - Change.org: "What CNN's report on the Bilson family misses is that it's not as simple as someone appearing and 'intervening' with a child and then all's going to be well. Learning is a work in progress for any student." (2/5/09)
Will you celebrate "Autism Sunday"?
From About.com Autism: "Will you celebrate Autism Sunday? This new event, launched in the UK, is a new way to raise autism awareness around the world." (2/4/09)
"Autism 911" and the costs of therapy
From About.com Autism: "In watching Autism 911, I was intrigued by the concept (yes, even autistic behavior can be modified with a system of rewards based on a learner's special interests). What shocked me, though, was the statement by the CNN anchor that a single day of behavioral intervention by the Autism Partnership costs... $2,500." (2/4/09)
A Family Seeks Calm Through Behavior Modification
From Disability Scoop: "When behavior spins out of control, it's a slow, step-by-step process to reclaim calm. That's what a behavior therapist says as he helps one California family cope with their 13-year-old who has autism." (2/4/09)
A Once and Former Warrior Mom
From Autism - Change.org: "There was a time when I equated advocacy with warrior-momness. I made sure it was written into Charlie's IEP that he was on a special diet free of this that and the other thing, and was at pains to distinguish 'food intolerance' from 'food allergy.'" (2/3/09)
Have you heard about "Autism 911"?
From About.com Autism: "The way this miniseries is presented is, in essence, The Nanny on steroids. Here's a bit from the CNN article describing the show and its star, 13 year old Marissa Bilson. Marissa is autistic - and out of control." (2/3/09)
Advocacy in Action & Adolescence
From Autism - Change.org: "Regardless of whether or not one is talking about autism, both 'adolescence' and 'middle school' are two words that seem to evoke more of a shudder or a 'thank God that's over' (or, 'oh my God, please do not even mention that to me!,' depending somewhat on the age of the child in question)." (2/2/09)
Finding the right home for your adult child with autism
From About.com Autism: "For many parents, the question of an appropriate home for their adult child with autism seems a million miles away. For others, it's a matter of immediate concern." (2/2/09)
NIH Funding: Too Much for Autism?
From Autism - Change.org: "Autism research in 2008 came up a whopping $118 million. Why whopping? Here's some relativity." (1/31/09)
My two faces of autism
From Fearless Females: "However, I also represent, respect, and understand the other side of autism that we call hell -- for those of you who understand what hell is, because not all of you do." (1/31/09)
More evidence pre-term birth tied to autism: study
From Reuters: "These children were about two to three times as likely to show signs of autism at age 2 as measured in a standard screening tool compared to other children." (1/29/09)
What If There Were an Autism Saliva Test?
From Autism - Change.org: "Autism is currently diagnosed in children through observation of a child's behavior, play skills, communication, and there is no biological test that says 'this is autism.' Were there such biomarkers, diagnosis would be precise and certain, and parents might have a very clear sense of what medical and other treatments to pursue." (1/29/09)
Gatorade Ad Spotlights Man With Autism
From Disability Scoop: "New commercials for the product feature professional athletes like Michael Jordan and Tiger Woods alongside Jason McElwain, a man with autism. McElwain received national attention in 2006 when he scored 20 points for his high school basketball team in just three minutes." (1/29/09)
DVD helps kids with autism understand emotions
From Disability News: "A DVD developed by British researchers is successfully using trucks and trains to help children with autism decode human emotions." (1/28/09)
7 Positive Things about Autism
From Teen Autism: Read the list, and add your own positives. (1/27/09)
Call for Interview Participants
From Autism Vox: "Claire Michalewicz of Canadian Television (CTV) is doing a story on autism and vitamin D. She would like to interview both a provider and a family on TV." (1/27/09)
Judge Not Lest Ye Be Judged
From Autism - Change.org, another reaction to the Daily Mail editorial that autism wrecks your life. (1/27/09)
Would Your Friend Say Your Child Is Better Off Dead?
Writing in favor of a prenatal test for autism, an editorial writer looks at her friends lives and decides they've been wrecked by their son's disorder. (1/26/09)
Are you the selfless parent of a child with autism?
From About.com Autism: "I must say that I am in awe of an individual for whom marriage and childbearing is a wholly unselfish and altruistic act - and for whom selflessness is a pure joy. Few of us would embrace an unexpected disability, and fewer of us would gladly dedicate their lives solely to the joy, satisfaction and confidence of another." (1/25/09)
Reset the Button
From Autism Games: "After trying several different ways to inspire some cooperation in a child who resisted playing the first few games I brought out, I finally hit upon a game that he loved. ... The child's father, apparently having had a pretty hard day with his son earlier, commented that as a father he just had to hit the reset button more often." (1/24/09)
Autistic hacker said to be likely to develop psychosis
From About.com Autism: "More significantly to the autism community, though, by 'pleading autism,' McKinnon is suggesting that Asperger syndrome is second only to psychosis. The implication here is that, by extraditing McKinnon to the US, the courts could, in essence, drive McKinnon insane." (1/24/09)
A Little Autism in All of Us?
From Autism - Change.org: "A recent study of 8000 chlldren suggests that many children have "autistic symptoms"---in the areas of social skills and communication in particular---but not to the extent that they are diagnosed." (1/23/09)
What Does Autism Look Like?
From 5 Minutes for Special Needs: "So what does autism look like? I don’t know that I can ever completely and succinctly answer that question. But I know this: I’d sooner be able to define autism than be able to define normal." (1/23/09)
More on Autism @ Whitehouse.gov
From Autism - Change.org: "It's time to focus not only on autism as something affecting children and young children in particular, but as a lifelong disability. ... A focus on the road ahead---a long-term view----on the needs of adolescents, teenagers, and adults is absolutely necessary, and starting right now." (1/23/09)
Autism Screening On Obama's Health Agenda
From ParentDish: "Autism screening and funding for treatment of the disease is high on President Barack Obama's agenda for the nation's health, and is the only disease or disorder called out on his new website, Whitehouse.gov, taking precedence even over cancer and heart disease." (1/22/09)
The Thin Line Between Desirable and Dehumanizing
From Autism - Change.org: "Why is it that when an autistic person accomplishes something so often it is labeled 'overcoming the condition?' Can an autistic person (or any person with a disability) just simply accomplish something as a person?" (1/22/09)
The Obama administration on disabilities and autism
From About.com Autism: "Curious about what the Obama administration has in mind for folks with autism? Wonder no more: the WhiteHouse.gov site has published its platform." (1/22/09)
Reviews of Temple Grandin's new book
From Disability News: "Her latest book, "Animals Make Us Human," attempts to help people understand the emotional lives of animals." (1/22/09)
The Transporters
The DVD series "The Transporters" helps children with autism learn about emotions. Human faces are transported onto trains and boats and other predictable vehicles to help children focus on their expressions.
Autism Gospel, According to John
From Autism Bites: "It is very difficult to find parents and children that are accepting of an ASD child. We have discovered who our real friends and family are since getting our dx on the children in Oct 2006. We have everyone we know falling into one of 3 groups. Accept us, hate us or ignore us. The largest for our experience is, ignore us." (1/20/09)
Trying Anything and Everything to Cure a Child's Autism
From the NY Times: "The Yankwitts’ many attempts to help their son and, in turn, help themselves are typical of the endless ups and downs faced by families of children with autism, for which there is no documented cure." (1/20/09)
What is Normal in Medicine and Society?
From Autism - Change.org: "Normal. Disordered. Diagnosis of Autism. These terms have definitions we generally accept enough to use in common dialogue. But these terms also have a history, someone or something that generated them, a context in society. These terms are also fluid, always evolving, changing based on perspective, culture, individual bias." (1/19/09)
The Alchemy of Need and Independence
From Autism - Change.org: "Sometimes I just feel that we're stuck in an endless morass of transitions, of inbetween and limbo, when Charlie---now an adolescent---is still so young, rapidly growing older and I just don't know." (1/19/09)
So What Is Autism Advocacy?
From Autism - Change.org: "Sometimes, quite to my puzzlement, the phrase 'autism advocate' seems to have come to mean 'pro-vaccine-safety' or 'anti-vaccine' advocate. That's not 'autism advocacy' but 'something else [vaccine safety?] advocacy.'" (1/18/09)
"Mary and Max" opens Sundance festival
From Disability News: "Melbourne animator Adam Elliot got an enthusiastic response from film industry insiders this week when his feature film, Mary and Max, opened the Sundance festival. The film focuses on a 20-year pen-pal friendship between an Australian 8-year-old (Mary) and an obese 44-year-old New Yorker with Asperger's syndrome (Max)." (1/16/09)
Dr. Simon Baron-Cohen on autism and prenatal testing
The autism researcher responds to a post on About.com Autism. (1/18/09)
Columnist: "Having an autistic child wrecks your life"
From Disability News: "Pondering a possible prenatal test for autism, Carol Sarler writes in the [UK] Daily Mail that her friends John and Cath have been forced to give up their jobs in order to look after their son Tom, who has autism. She says Tom's condition has ruined her friend's lives, as well as the lives of Helen and Bill, Tom's grandparents." (1/16/09)
Is independent living over-rated?
From About.com Autism: "I'm also finding myself increasing frustrated by the realization that the expectations placed on adults with autism (and, in fact, all adults) are, to a very large degree, the invention of the past 60 years of cultural evolution." (1/15/09)
Column: What's unethical about prenatal tests for autism?
From Disability News: "[UK] Guardian columnist Marcel Berlin says he is puzzled by Simon Baron-Cohen’s call for an ethical debate about the development of prenatal tests for autism, since prenatal tests for Down syndrome have been used for many years. He wonders why autism should be treated differently from other conditions." (1/15/09)
Self Determination Needs to Be More than a Buzzwo
From Autism - Change.org: I love, love, LOVE the philosophy behind self determination. ... However, my experience with services is that they often have made little, if any, consideration of the types of tools and education that is required for me to actually HAVE self determination." (1/15/09)
Insurance and Autism: Not Just For ABA?
From Autism - Change.org: "This discussion can and needs to include more of an understanding of the potentially long-term needs of a person with disabilities who, with the right supports and enough of them, can do very, very well." (1/15/09)
DOJ Restrictions on Service Animals
From Autism - Change.org: "When a disability is invisible, and it's illegal to demand proof of disability in some situations, how can abuse of the service animal laws (i.e. people who don't have a disability posing as disabled in order to bring animals into public places) be controlled?" (1/14/09)
PDD-NOS and Psychosisďż˝
From ends with 8741: "In a nutshell, the social worker at NIH said that psychosis and PDD-NOS sometimes occur simultaneously. What's unique about psychosis in conjunction with PDD-NOS is that the psychosis is focused on a child's interest." (1/14/09)
Possibility of pre-natal test for autism raises ethical questions
From About.com Autism: "The question of whether autism should be prevented, cured, or otherwise ended is highly controversial. In fact, it's inflammatory. Almost equally inflammatory is the notion that people of potential talent and genius should be protected, while people of less outstanding capability ... shouldn't." (1/14/09)
Noli Me Tangere
From Autism - Change.org: "My son and his classmates are in middle school, are getting older, and his teacher has emphasized, tickles and piggy backs rides and the like are out. A part of me feels sad---another sign that childhood is waning---but I most of all feel, yes, this has to be so." (1/14/09)
A Playlist for the Sound-Sensitive
From Autism - Change.org: "I've been thinking about putting together a playlist of songs or musicians or compositions that appeal to Charlie or that seem, for lack of a better phrase or concept, 'sound-sensitivity-friendly.' ... What would you put on a playlist of the 'sound-sensitivity-friendly,' soothing/calming/pleasurable sort?" (1/12/09)
I Heart Echolalia
From Teen Autism: "Yes, it can be annoying sometimes, and maybe completely random, but hey! Your child is talking. Do you get it? Why would you want to stop that?" (1/12/09)
Charlotte Moore on Prenatal Autism Testing
From Autism - Change.org: "In any case it's a mistake to think that life is easier for the more able." (1/12/09)
When is it Time to be a Spokesperson for Autism?
From The Karianna Spectrum: "Although the more public display of different flavors of autism, the better; it shouldn't be a 'requirement' and certainly isn't something that the newly-diagnosed family could do." (1/12/09)
Autism 911: Help for a family in chaos
From CNN.com: "But before you sit in judgment of the Bilsons, and suggest they just need a firm hand to keep their middle child in line, consider one thing: They are trying to cope with a child with severely impaired social sensibilities." (1/12/09)
Asthma Links
From Asthma Mom: "News stories on pneumonia vaccine recommendations, nitric oxide tests, coddling kids." (1/12/09)
Autism at Sundance
From Autism - Change.org: "The Sundance Film Festival this year is showing two films that feature characters identified as having Aspergers Syndrome." (1/9/09)
Why We Need to Think Differently About Autism
From Autism - Change.org: "I know there's more than a little disagreement about talking about autism as 'disability' and 'difference' instead of 'disease' and 'disorder,' as noted on our list of autism controversies. The reason I talk about autism as the former, as 'disability' and 'difference,' is because those terms help me to understand why Charlie got so upset last night." (1/11/09)
What's the World News Got To Do With It?
From The Joy of Autism: "As I've said numerous times in my presentations, there is enough death-talk in this world -- even among many autism 'advocates.' It's time for more life talk." (1/11/09)
Assisted Reproduction and Autism
From ProudParenting.com: "While most of the research being conducted is genetic based, the author says that more research should be done on environmental factors, including assisted reproduction technologies, which have only become available in the past 30 years." (1/10/09)
Prenatal testing for autism: The ethical debate
From Disability News: "Scientists are coming closer to developing a reliable prenatal test for autism, which would open the door to selective abortion as well as the possibility of a prenatal drug treatment to prevent the disorder." (1/9/09)
Limitations and Impairments, and Potential
From Autism - Change.org: "So if 'limitation' and 'impairments' are words that describe what someone 'can't' do, 'potential' expresses what he or she could do; has the possibility of doing. It's a word that, to me, leaves the door open." (1/8/09)
Announcing The Autism Valentines Day Project
From About.com Autism: "With that in mind, I thought I'd reach out to parents, teachers, lovers, friends, grandparents, and - of course - teens and adults on the spectrum to ask as many people as possible to send Valentines to their autistic loved ones - both in person and to this site, www.autism.about.com." (1/7/09)
Autism - Seizure Misconception
From The Karianna Spectrum: "Just like the causes of different flavors of autism are varied, the treatments are also varied. Sometimes the best pharmaceutical agent to control unwanted symptoms happens to be an anti-convulsant. Sometimes it is an anti-psychotic - yet I'd hate for people to believe people on the spectrum are 'psychotic.'" (1/7/09)
New autism resource: free visual tools for teaching soccer
From About.com Autism: "Ready for Soccer includes a 'basics' poster designed to help kids with autism catch up with their typical peers by providing concrete information about what a soccer ball is, what a goal is, and what you're supposed to do with the ball and the goal! Another three posters provide step-by-step visuals and instructions for dribbling, kicking and passing." (1/6/09)
Intestinal pain or autism?
From About.com Autism: "In the last day or two, more than one person has suggested that some parents of children with autism deliberately refuse to treat their children's gastronintestinal issues. From what I can gather, this accusation is based on the idea that these parents believe that gastrointestinal symptoms are actually some form of autistic self-expression." (1/4/09)
Why did the echolalia cross the road?
From MOM - Not Otherwise Specified: "Lately, though, Bud has not been satisfied with simply scripting his jokes; he's trying to make them his own. And, as Bud has learned, in most situations in which your echolalic script is not quite doing it for you, you can MITIGATE your echolalia by swapping out words to fit your new situation." (1/2/09)
Defining the Autism Debate
From About.com Autism: "The autism community is not in disagreement over whether people with autism should be left in physical pain despite the availability of medical treatments. ... The question is whether the differences in thinking and perception which are absolutely central to autism spectrum disorders should be considered disorders to be cured - or traits to be valued." (1/3/09)
Best of 2008 for the autism community - your ideas requested
From About.com Autism: "I've been trying to put together some 'best of' articles (probably coming next week), but before I do - I'd appreciate your thoughts. What, in the following categories, do you feel are the best of the best from 2008?" (12/31/08)
Interesting looking product for Autistic children
From The Princess & The Monkey: "The review was for a great looking product called Playtime with Zeebu. If you have or know a child on the autism spectrum go check it out. I myself am really considering it." (12/31/08)
What's your autism resolution for 2009?
From About.com Autism: "You, too, may have an "autism resolution" for 2009. It may be huge (create an international coalition to change autism policy?) or tiny (help my child cope with haircuts) - or anywhere in between. I, personally, find it helpful to make my resolution public, just to keep me honest! If you do, too - please share!" (12/31/08)
Let's find one point of agreement among autism advocates
From About.com Autism: "Okay, we can do this. As a community, we can agree on one - just one - priority for the autism community for 2009." (12/29/08)
Neurodiversity
The parent of a child with autism created this YouTube video celebrating all the different ways humans see the world.
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