Teachers can be great allies in keeping your child with craniosynostosis safe and successful in school, but you'll need to make sure they have all the knowledge they need to help. Use these suggestions to create an information packet to bring educators up to speed.
Five Things Teachers Need to Know
1. My child may have some problems with speech, language, and learning due to her condition. If you have any concerns or observations, please discuss them with me.
2. My child may have to spend some time away from the classroom for medical procedures. Please work with me to make sure he keeps up with his studies.
3. It's okay to let my child's classmates know about her differences as long as it is done in an appropriate way. I'd be happy to help prepare a program.
4. My child is an individual, not a diagnosis. Please be alert and receptive to the things that make him unique and special.
5. Please keep the lines of communication open between our home and the school. My child needs all the adults in her life working together.
Printouts to Share with Teachers
Craniosynostosis
Source: Children's Medical Center
Craniosynostosis
Source: MayoClinic.com
Supporting a Pupil
Source: Changing Faces
Fact Sheets on Craniosynostosis Syndromes
Source: Headlines Craniofacial Support
Tips for Teachers
Source: About Face USA

