1: DOWNLOAD the booklet "A Guide to Understanding Craniosynostosis from the Children's Craniofacial Association.
2: VIEW videos made by parents of children with craniosynostosis on the Craniosynostosis and Positional Plagiocephaly Support site.
3: BUY a memoir written by parents of children with craniosynostosis, such as Light Will Emerge or The Beauty of Love.
4: PARTICIPATE in an online support group for parents of children with craniosynostosis, such as Cranio Kids or Craniosynostosis and Parents Support.
5: VISIT our listing of craniosynostosis links for more information and ideas.
Do you have suggestions for parents of children newly diagnosed with craniosynostosis? Tell them about that book that explained everything, that website full of resources, that e-mail group you still lean on, that experience with your child that made you see things differently. Those of us who have been there have important gifts to give those who have not yet done that. Offer your words of wisdom and experience where you see "Readers Respond" below.
