Before You Look for Information on Cystic Fibrosis

Sorting through the wealth of online information on cystic fibrosis can be a daunting task. What's worth reading, and what's a waste of time? Start with this recommended list of resources to find the information you need to understand and help your child.

On this Parenting Special Needs site

There are lots of articles on this site of interest to parents of children with cystic fibrosis, but these three will give you a good place to begin.

From the About guide to Cystic Fibrosis

Lori Alma, the About.com guide to Cystic Fibrosis, has loads of information of interest to parents of children with cystic fibrosis. Start with these three articles.

Around the About network

There's information on cystic fibrosis all around About.com. Start with these three sites.

Just the facts

These reference sites give good overviews of cystic fibrosis diagnosis and treatment.

Organizations

These sites representing CF organizations promote research and offer in-depth information on congenital heart defects.

Medical sites

These sites focus on medical, nutritional, and lifestyle issues for people with cystic fibrosis and their families.

Support

These sites help individuals and families affected by cystic fibrosis connect with one another to provide help, advice and fellowship.

Information for kids

Explain cystic fibrosis to your child with the help of these sites.