News on Down Syndrome
News stories of interest to parents of children with Down syndrome, from the Parenting Special Needs blog and news sources around the Web. For the latest news, go to the Today's News folder.
Gift Ideas for a Young Child with Down Syndrome
From Suite 101: "Raising a child with Down Syndrome comes with many joys and challenges. If you are buying a gift for such a child, there are many that are practical, and therapeutic." (11/5/09)
From Suite 101: "Raising a child with Down Syndrome comes with many joys and challenges. If you are buying a gift for such a child, there are many that are practical, and therapeutic." (11/5/09)
Fewer Born With Down Syndrome As Prenatal Diagnoses Rise
From Disability Scoop: "The number of American babies born with Down syndrome is on the decline despite a dramatic increase in the number of babies who are diagnosed prenatally with the chromosomal disorder, researchers say." (11/3/09)
From Disability Scoop: "The number of American babies born with Down syndrome is on the decline despite a dramatic increase in the number of babies who are diagnosed prenatally with the chromosomal disorder, researchers say." (11/3/09)
Down Syndrome Awareness in Canada
From Big Blueberry Eyes: "Down Syndrome Awareness Month may be over here in the U.S., but it's just starting in Canada." (11/2/09)
From Big Blueberry Eyes: "Down Syndrome Awareness Month may be over here in the U.S., but it's just starting in Canada." (11/2/09)
French Convent accepts sisters with Down syndrome
From Cause of Our Joy: "The following is a rough translation of a beautiful article on a French Benedictine community which embraces vocations from women with Down syndrome. The quote from the Mother Superior is something that I have often thought; our children cannot sin, no wonder they have such an amazing connection with God. Why shouldn't they be religious?" (10/31/09)
From Cause of Our Joy: "The following is a rough translation of a beautiful article on a French Benedictine community which embraces vocations from women with Down syndrome. The quote from the Mother Superior is something that I have often thought; our children cannot sin, no wonder they have such an amazing connection with God. Why shouldn't they be religious?" (10/31/09)
In Their Own Words: Perspectives on Down Syndrome
Disability News gathers articles from UK papers on parenting a child with Down syndrome or choosing not to. (10/29/09)
Disability News gathers articles from UK papers on parenting a child with Down syndrome or choosing not to. (10/29/09)
The upside of Down syndrome
From Disability News: "Writing in the [UK] Guardian, Carol Boys says she supports a woman's right to choose whether to have a child with a disability, but cherishes her own son with Down syndrome." (10/28/09)
From Disability News: "Writing in the [UK] Guardian, Carol Boys says she supports a woman's right to choose whether to have a child with a disability, but cherishes her own son with Down syndrome." (10/28/09)
"Would you abort a baby with Down syndrome?
From Disabilitiy News: "Interviews with two women in the [UK] Daily Mail." (10/28/09)
From Disabilitiy News: "Interviews with two women in the [UK] Daily Mail." (10/28/09)
He's Hot, He's Cold, Hot, Cold...
From Down Syndrome New Mama: "Leggings. Soft knit leggings that slip on and off easily and can cover the legs as well as the entire foot or only part, leaving those prehensile toes free to play."
From Down Syndrome New Mama: "Leggings. Soft knit leggings that slip on and off easily and can cover the legs as well as the entire foot or only part, leaving those prehensile toes free to play."
Cruel and Unusual?
From Big Blueberry Eyes: "Just what am I 'forcing' Kayla to 'endure' is what I'd like to know. Cause from my view I'm forcing her to endure a life filled with love, respect, support, friendship, guidance, encouragement, experiences, fun, education, inclusion in her family, school, community (as it should be)...and that doesn't sound 'miserable' to me at all." (10/16/09)
From Big Blueberry Eyes: "Just what am I 'forcing' Kayla to 'endure' is what I'd like to know. Cause from my view I'm forcing her to endure a life filled with love, respect, support, friendship, guidance, encouragement, experiences, fun, education, inclusion in her family, school, community (as it should be)...and that doesn't sound 'miserable' to me at all." (10/16/09)
October is Down Syndrome Awareness Month: Time for me to wake up
From Mom-Blog: "I knew what full inclusion meant, and yet, I didn%u2019t know. I think that until this year, I really thought Amelia would only be a little bit behind academically, and that, ya know, hard work and focus would... well.. " (10/15/09)
From Mom-Blog: "I knew what full inclusion meant, and yet, I didn%u2019t know. I think that until this year, I really thought Amelia would only be a little bit behind academically, and that, ya know, hard work and focus would... well.. " (10/15/09)
Down Syndrome and Driving
From Big Blueberry Eyes: "Over the 6 years since Kayla was born I have heard/read of individuals with Down syndrome who do have their driver's license...so I know it's not impossible." (10/9/09)
From Big Blueberry Eyes: "Over the 6 years since Kayla was born I have heard/read of individuals with Down syndrome who do have their driver's license...so I know it's not impossible." (10/9/09)
Gaffney completes frigid Boston swim to raise DS awareness
From Disabiliity News: "Battling high waves and frigid temperatures, 31-year-old Karen Gaffney swam five miles across Boston Harbor to demonstrate that people with Down syndrome have 'tremendous capabilities.'" (10/9/09)
From Disabiliity News: "Battling high waves and frigid temperatures, 31-year-old Karen Gaffney swam five miles across Boston Harbor to demonstrate that people with Down syndrome have 'tremendous capabilities.'" (10/9/09)
A "Little Bit" of Down Syndrome
From Life With My Special Ks: "Children with Down syndrome, just like typical kids, are individuals. They have their own strengths and weaknesses and you can't define them by their disability. If you have a baby with Down syndrome, he/she will let you know who they are and what they are capable of in their own time." (10/7/09)
From Life With My Special Ks: "Children with Down syndrome, just like typical kids, are individuals. They have their own strengths and weaknesses and you can't define them by their disability. If you have a baby with Down syndrome, he/she will let you know who they are and what they are capable of in their own time." (10/7/09)
Celebrate National Down Syndrome Month!
From About.com Down Syndrome: "Since 1981, October has been National Down Syndrome Awareness month and is part of a larger ongoing national effort to raise awareness about the abilities of people with Down syndrome." (10/4/09)
From About.com Down Syndrome: "Since 1981, October has been National Down Syndrome Awareness month and is part of a larger ongoing national effort to raise awareness about the abilities of people with Down syndrome." (10/4/09)
Woman with DS swims Boston Harbor
From Garden of Eagan: "Karen Gaffney, an accomplished swimmer/athlete and the first person with Down syndrome to complete a relay swim across the English Channel, completed a 9-mile swim across Lake Tahoe, and multiple competitions across San Francisco Bay." (10/3/09)
From Garden of Eagan: "Karen Gaffney, an accomplished swimmer/athlete and the first person with Down syndrome to complete a relay swim across the English Channel, completed a 9-mile swim across Lake Tahoe, and multiple competitions across San Francisco Bay." (10/3/09)
Doctors Urged To Offer Options, Avoid 'I'm Sorry' With Diagnosis
From Disability Scoop: "Women who receive a prenatal diagnosis of Down syndrome are happiest when they were prepared for the news and provided as much information as possible, new research finds." (9/30/09)
From Disability Scoop: "Women who receive a prenatal diagnosis of Down syndrome are happiest when they were prepared for the news and provided as much information as possible, new research finds." (9/30/09)
Actor with Down syndrome wins top Spanish film award
From Disability News: "Pablo Pineda, a Spanish actor with Down syndrome, has been awarded the best actor prize at the San Sebastian Film Festival for his performance in the film 'Yo, Tambien' ('Me Too')." (9/29/09)
From Disability News: "Pablo Pineda, a Spanish actor with Down syndrome, has been awarded the best actor prize at the San Sebastian Film Festival for his performance in the film 'Yo, Tambien' ('Me Too')." (9/29/09)
New advice for doctors diagnosing prenatal Down syndrome
From Science Blog: "New prenatal tests for Down syndrome are soon to be offered to all pregnant women across the United States, yet telling an expectant couple that their child will be born with Down syndrome is a task very few physicians are trained for, claims research published in the American Journal of Medical Genetics." (9/28/09)
From Science Blog: "New prenatal tests for Down syndrome are soon to be offered to all pregnant women across the United States, yet telling an expectant couple that their child will be born with Down syndrome is a task very few physicians are trained for, claims research published in the American Journal of Medical Genetics." (9/28/09)
Sign Language Benefits Children with Down Syndrome
From About.com Deafness: "Children with down syndrome are a known group of nonverbal sign language users." (9/26/09)
From About.com Deafness: "Children with down syndrome are a known group of nonverbal sign language users." (9/26/09)
High school grad with DS wins part on Fox show
From Disability News: "Lauren Potter, a graduate of Riverside's Poly High School, has landed a part in an episode of the new Fox TV series 'Glee,' which premieres this fall. Lauren has Down syndrome." (6/16/09)
From Disability News: "Lauren Potter, a graduate of Riverside's Poly High School, has landed a part in an episode of the new Fox TV series 'Glee,' which premieres this fall. Lauren has Down syndrome." (6/16/09)
Article: ‘Will babies with Down syndrome slowly disappear?’
From Disability News: "Writing in the Archives of Disease in Childhood, Dr. Brian Skotko reports that the number of babies born with Down syndrome has been steadily decreasing around the world as prenatal testing and selective termination have become more widespread." (9/15/09)
From Disability News: "Writing in the Archives of Disease in Childhood, Dr. Brian Skotko reports that the number of babies born with Down syndrome has been steadily decreasing around the world as prenatal testing and selective termination have become more widespread." (9/15/09)
Down Syndrome and H1N1 Vaccinations for Swine Flu
From About.com Down Syndrome: "All children and young adults (up to age 24), with or without Down syndrome, should be offered the vaccine." (9/10/09)
From About.com Down Syndrome: "All children and young adults (up to age 24), with or without Down syndrome, should be offered the vaccine." (9/10/09)
One of the tricky questions about Down syndrome
From Pinwheels: "And by that I mean: supplements." (8/28/09)
From Pinwheels: "And by that I mean: supplements." (8/28/09)
Sleep Troubles Often Unnoticed In Those With Down Syndrome
From Disability Scoop: "Most adults with Down syndrome unknowingly experience severe sleep apnea, according to new research published Saturday in the Journal of Clinical Sleep Medicine." (8/18/09)
From Disability Scoop: "Most adults with Down syndrome unknowingly experience severe sleep apnea, according to new research published Saturday in the Journal of Clinical Sleep Medicine." (8/18/09)
Prenatal Diagnosis of Down Syndrome?
Here's what other mothers say, from Down Syndrome New Mama. (8/3/09)
Here's what other mothers say, from Down Syndrome New Mama. (8/3/09)
Two prenatal Down syndrome diagnoses, two perspectives
From Disability News: "Two mothers share their perspectives on deciding whether or not to terminate a pregnancy after receiving a Down syndrome diagnosis." (7/20/09)
From Disability News: "Two mothers share their perspectives on deciding whether or not to terminate a pregnancy after receiving a Down syndrome diagnosis." (7/20/09)
Man With Down Syndrome Decides To Wait For Miss Right
From Disability Scoop: "A man with Down syndrome whose mother went public to help him find someone to have sex with rejected all of the offers he received." (7/16/09)
From Disability Scoop: "A man with Down syndrome whose mother went public to help him find someone to have sex with rejected all of the offers he received." (7/16/09)
For David and His Disciples
From Down Syndrome New Mama: "My daughter with Down syndrome doesn't suffer at all. And the only upcoming suffering she will probably face in her life is the ridicule and rejection of people like you. Might she get sick at some point? Yes, and you might too." (7/14/09)
From Down Syndrome New Mama: "My daughter with Down syndrome doesn't suffer at all. And the only upcoming suffering she will probably face in her life is the ridicule and rejection of people like you. Might she get sick at some point? Yes, and you might too." (7/14/09)
Man With Down Syndrome To Be Honored At All-Star Game
From Disability Scoop: "Brad Hennefer of Cherry Hill, N.J. has Down syndrome and will be recognized for starting Golf For Life, an organization that introduces other people with Down syndrome to golfing." (7/9/09)
From Disability Scoop: "Brad Hennefer of Cherry Hill, N.J. has Down syndrome and will be recognized for starting Golf For Life, an organization that introduces other people with Down syndrome to golfing." (7/9/09)
Golfer with Down Syndrome and a Big Heart
From About.com Down Syndrome: "Brad Hennefer, a 20-year-old man with Down syndrome, travels around the country helping young children with Down syndrome get inspired to start golfing. As part of the Brad Hennefer Golf For Life Foundation, Brad has inspired scores of other children with Down syndrome to play the game of golf." (6/30/09)
From About.com Down Syndrome: "Brad Hennefer, a 20-year-old man with Down syndrome, travels around the country helping young children with Down syndrome get inspired to start golfing. As part of the Brad Hennefer Golf For Life Foundation, Brad has inspired scores of other children with Down syndrome to play the game of golf." (6/30/09)
Resource of the Week - Dads Appreciating Down Syndrome
From About.com Down Syndrome: "While a lot of support groups focus on Mom or siblings, DADS is an 'action group' (as they prefer to be called) for fathers of children with Down syndrome." (6/21/09)
From About.com Down Syndrome: "While a lot of support groups focus on Mom or siblings, DADS is an 'action group' (as they prefer to be called) for fathers of children with Down syndrome." (6/21/09)
Couple Sues Over Daughter Born With Down Syndrome - Disability Scoop
From Disability Scoop: "Deborah and Ariel Levy say they would have aborted the child had they known she would have Down syndrome. Now they are seeking over $14 million to cover the cost of raising their daughter and meeting her educational and medical needs for life." (6/16/09)
From Disability Scoop: "Deborah and Ariel Levy say they would have aborted the child had they known she would have Down syndrome. Now they are seeking over $14 million to cover the cost of raising their daughter and meeting her educational and medical needs for life." (6/16/09)
Ethical Concerns About Non-Invasive Prenatal Screening
From About.com Down Syndrome: "Do you think that the general public has any idea about the ethical issues involved in non-invasive prenatal testing? How do you think that people will feel about this type of testing?" (6/15/09)
From About.com Down Syndrome: "Do you think that the general public has any idea about the ethical issues involved in non-invasive prenatal testing? How do you think that people will feel about this type of testing?" (6/15/09)
Writer sees ‘impending epidemic of disability abortions’
From Disability News: "Writing in the American Spectator, Daniel Allott assesses the potential impact of Sequenom, a California company that has promised to produce an earlier, more reliable prenatal test for Down syndrome." (6/9/09)
From Disability News: "Writing in the American Spectator, Daniel Allott assesses the potential impact of Sequenom, a California company that has promised to produce an earlier, more reliable prenatal test for Down syndrome." (6/9/09)
Simian Crease Discovery
From Class of 2008: "I love this phenomenon of blogging. Almost twenty years later and I am still learning about this wonderful world of Down syndrome." (6/6/09)
From Class of 2008: "I love this phenomenon of blogging. Almost twenty years later and I am still learning about this wonderful world of Down syndrome." (6/6/09)
Scout with Down syndrome earns Eagle rank
From Disability News: "Townsend began in scouting when he was six, and has completed years of requirements in such areas as camping skills, communications, citizenship and personal budgeting. For his Eagle project, he managed and supervised the renovation of a church parking lot." (6/4/09)
From Disability News: "Townsend began in scouting when he was six, and has completed years of requirements in such areas as camping skills, communications, citizenship and personal budgeting. For his Eagle project, he managed and supervised the renovation of a church parking lot." (6/4/09)
Third Graders Write Award-Winning Book About Down Syndrome
From About.com Down Syndrome: "The third grade class at Gideon Elementary School in Gideon, MO worked collaboratively to write and illustrate a book for a Scholastic Kids are Authors contest. ... The students were inspired to pick their topic by schoolmate and kindergartener, Beau Pyrtle, who happens to have Down Syndrome." (6/3/09)
From About.com Down Syndrome: "The third grade class at Gideon Elementary School in Gideon, MO worked collaboratively to write and illustrate a book for a Scholastic Kids are Authors contest. ... The students were inspired to pick their topic by schoolmate and kindergartener, Beau Pyrtle, who happens to have Down Syndrome." (6/3/09)
Parents and Adult Sibs Needed - Make Your Voice Heard
From About.com Down Syndrome: "Even if you have never had genetic counseling, you can weigh in on what you think would be the most helpful by participating in this online survey designed to gather information about Down syndrome and genetic counseling. Please weigh in and make your voice heard!" (5/28/09)
From About.com Down Syndrome: "Even if you have never had genetic counseling, you can weigh in on what you think would be the most helpful by participating in this online survey designed to gather information about Down syndrome and genetic counseling. Please weigh in and make your voice heard!" (5/28/09)
VIP Round-Up - Interesting People with Down Syndrome
From About.com Down Syndrome: "While every person with Down syndrome is a very important person or VIP, some people do manage to garner a little more attention than others." (5/27/09)
From About.com Down Syndrome: "While every person with Down syndrome is a very important person or VIP, some people do manage to garner a little more attention than others." (5/27/09)
The Throwaway Child
From The Guardian: "When Matthew Crosby was born with Down's syndrome in the 60s, his parents were told that he would be harmful to his sister and should be 'put away'. His mother, Anne, tells Charlotte Moore about the terrible conflict of emotions unleashed by his short life." (5/27/09)
From The Guardian: "When Matthew Crosby was born with Down's syndrome in the 60s, his parents were told that he would be harmful to his sister and should be 'put away'. His mother, Anne, tells Charlotte Moore about the terrible conflict of emotions unleashed by his short life." (5/27/09)
UK parents say schools don’t want kids with DS
From Disability News: "Parents of children with Down syndrome in the UK say they feel their neighborhood schools are the best place for their kids, but mainstream schools are increasingly challenging the right of children with DS to attend school alongside their peers." (5/22/09)
From Disability News: "Parents of children with Down syndrome in the UK say they feel their neighborhood schools are the best place for their kids, but mainstream schools are increasingly challenging the right of children with DS to attend school alongside their peers." (5/22/09)
Good News About Down Syndrome and Cancer
From About.com Down Syndrome: "Excluding the risk for leukemia, people with Down syndrome are known to have a lower risk of cancer than the general population. In fact, the risk for a person with Down syndrome to develop cancer is about one tenth the risk of the general population." (5/21/09)
From About.com Down Syndrome: "Excluding the risk for leukemia, people with Down syndrome are known to have a lower risk of cancer than the general population. In fact, the risk for a person with Down syndrome to develop cancer is about one tenth the risk of the general population." (5/21/09)
Why do people with Down syndrome have less cancer?
From Science Blog: "Most cancers are rare in people with Down syndrome, whose overall cancer mortality is below 10 percent of that in the general population. Since they have an extra copy of chromosome 21, it's been proposed that people with Down syndrome may be getting an extra dose of one or more cancer-protective genes." (5/21/09)
From Science Blog: "Most cancers are rare in people with Down syndrome, whose overall cancer mortality is below 10 percent of that in the general population. Since they have an extra copy of chromosome 21, it's been proposed that people with Down syndrome may be getting an extra dose of one or more cancer-protective genes." (5/21/09)
What Do You Say?
From Hope for Elijah: "Scott called me last night while he was out shopping. He said he ran into a family with an infant that had Down syndrome. He wanted to introduce himself and talk with them. The problem was he was not sure how to approach the family." (5/15/09)
From Hope for Elijah: "Scott called me last night while he was out shopping. He said he ran into a family with an infant that had Down syndrome. He wanted to introduce himself and talk with them. The problem was he was not sure how to approach the family." (5/15/09)
Swine Flu, Down Syndrome and Heart Defects
From About.com Down Syndrome: "While the CDC report focuses on the two deaths from the swine flu, they also provided more information on the 22 people who have been hospitalized with the swine flu - including one 25 year old gentleman with Down syndrome and a congenital heart defect." (5/12/09)
From About.com Down Syndrome: "While the CDC report focuses on the two deaths from the swine flu, they also provided more information on the 22 people who have been hospitalized with the swine flu - including one 25 year old gentleman with Down syndrome and a congenital heart defect." (5/12/09)
Term of the Week - FISH Analysis
From About.com Down Syndrome: "Do you ever wonder how scientists think up names for things - for example, FISH testing. If someone were to ask you what 'FISH testing' is, your first thought would probably not be that it is a way to diagnose Down syndrome. But it is." (5/4/09)
From About.com Down Syndrome: "Do you ever wonder how scientists think up names for things - for example, FISH testing. If someone were to ask you what 'FISH testing' is, your first thought would probably not be that it is a way to diagnose Down syndrome. But it is." (5/4/09)
Columnist: Don’t let student with DS devalue college degree
From Disability News: "Leonard Stern, editor of the editorial pages in the Ottawa Citizen, says Toronto's York University is wise to deny Ashif Jaffer the opportunity to get a college degree. Jaffer gained admission to the school without disclosing that he has Down syndrome." (4/29/09)
From Disability News: "Leonard Stern, editor of the editorial pages in the Ottawa Citizen, says Toronto's York University is wise to deny Ashif Jaffer the opportunity to get a college degree. Jaffer gained admission to the school without disclosing that he has Down syndrome." (4/29/09)
Resource of the Week - Down Syndrome Pregnancy Board at Babycenter
From About.com Down Syndrome: "There are few things in life more terrifying in life than hearing that your unborn baby could have a health problem. There is an over-riding fear, grief at the loss of the baby you imagined, worry about the baby' health and a sense of isolation. Parents often feel that no one knows what they are going through." (4/25/09)
From About.com Down Syndrome: "There are few things in life more terrifying in life than hearing that your unborn baby could have a health problem. There is an over-riding fear, grief at the loss of the baby you imagined, worry about the baby' health and a sense of isolation. Parents often feel that no one knows what they are going through." (4/25/09)
Longevity and Down Syndrome
From About.com Down Syndrome: "While it is interesting to hear about the oldest living person with Down syndrome in the U.K., and to learn about the Guinness Book of World Record holder in the U.S., there is a downside to this longevity." (4/17/09)
From About.com Down Syndrome: "While it is interesting to hear about the oldest living person with Down syndrome in the U.K., and to learn about the Guinness Book of World Record holder in the U.S., there is a downside to this longevity." (4/17/09)
*just* Down syndrome
From Garden of Eagan: "That's what I want today. Today I want a kid who ONLY has Down syndrome. Angela has so many things that are totally unrelated to DS, and today THOSE are the things driving me crazy. If we were dealing with just Down syndrome alone, life would be a piece of cake!" (4/16/09)
From Garden of Eagan: "That's what I want today. Today I want a kid who ONLY has Down syndrome. Angela has so many things that are totally unrelated to DS, and today THOSE are the things driving me crazy. If we were dealing with just Down syndrome alone, life would be a piece of cake!" (4/16/09)
The Popular Press and Down Syndrome - Getting the Good News Out
From About.com Down Syndrome: "Just because you have experience with one individual with Down syndrome, you by no means have an idea of the wide range of abilities of people with Down syndrome nor do you have current information about health and medical concerns." (4/14/09)
From About.com Down Syndrome: "Just because you have experience with one individual with Down syndrome, you by no means have an idea of the wide range of abilities of people with Down syndrome nor do you have current information about health and medical concerns." (4/14/09)
Special-Needs Business Profile - SPECS4US
Profile of a parent-run business that makes specialized eyeglasses for children with Down syndrome.
Profile of a parent-run business that makes specialized eyeglasses for children with Down syndrome.
Children with Down syndrome flourish with Boston Ballet
From Disability News: "Parents and teachers say the program fosters friendships, self-confidence, and 'exuberance of movement.'" (4/10/09)
From Disability News: "Parents and teachers say the program fosters friendships, self-confidence, and 'exuberance of movement.'" (4/10/09)
Alzheimer's Far More Likely In People With Down Syndrome
From Disability Scoop: "Medical advances mean that it's more and more likely that people with Down syndrome will reach old age. And that means a ballooning population of people experiencing both Down syndrome and Alzheimer's." (4/9/09)
From Disability Scoop: "Medical advances mean that it's more and more likely that people with Down syndrome will reach old age. And that means a ballooning population of people experiencing both Down syndrome and Alzheimer's." (4/9/09)
What does the future hold for children with mosaic Down syndrome?
From Mosaic Moments: "Of course, there is no way to predict any child's future. For me, and many others, we just take it day by day." (4/6/09)
From Mosaic Moments: "Of course, there is no way to predict any child's future. For me, and many others, we just take it day by day." (4/6/09)
When You Realized The Image Was Wrong
From Mosaic Moments: "What did you worry about after you were told your child had Down syndrome or mosaic Down syndrome and what made you realize that those concerns were only because of the image you had formed in your mind?"" (3/28/09)
From Mosaic Moments: "What did you worry about after you were told your child had Down syndrome or mosaic Down syndrome and what made you realize that those concerns were only because of the image you had formed in your mind?"" (3/28/09)
Reality with DS a far cry from bleak forecasts, parents say
From Disability News: "A new federal law is supposed to 'better inform medical professionals and parents about the realities of the genetic condition' instead of focusing on outdated information and the worst possible outcomes, advocates say." (3/25/09)
From Disability News: "A new federal law is supposed to 'better inform medical professionals and parents about the realities of the genetic condition' instead of focusing on outdated information and the worst possible outcomes, advocates say." (3/25/09)
Actions Speak Louder than Words - Athletes with Down Syndrome
From About.com Down Syndrome: "Do you have a favorite athlete with Down syndrome story? Send me the information or a link and I will compile a list to show people just what individuals with Down syndrome can accomplish!" (3/25/09)
From About.com Down Syndrome: "Do you have a favorite athlete with Down syndrome story? Send me the information or a link and I will compile a list to show people just what individuals with Down syndrome can accomplish!" (3/25/09)
Columnist: Prejudice persists over Down Syndrome
From Disability News: "Columnist Alasdair Palmer writes in the [UK] Telegraph that prejudice persists against people with Down syndrome, even as medical and educational advances have vastly improved their quality of life in recent decades." (3/23/09)
From Disability News: "Columnist Alasdair Palmer writes in the [UK] Telegraph that prejudice persists against people with Down syndrome, even as medical and educational advances have vastly improved their quality of life in recent decades." (3/23/09)
Cord Blood Banking and Down Syndrome
From About.com Down Syndrome: "Did you look into donating or banking your infant with Down syndrome's cord blood? What were you told?" (3/20/09)
From About.com Down Syndrome: "Did you look into donating or banking your infant with Down syndrome's cord blood? What were you told?" (3/20/09)
Would you take it away?
From Life With My Special Ks: "SO if some scientist came up with a magic pill and said, "If you give this pill to your child, it would take away Down syndrome! It would take away the developmental delays! It would take away all your child's struggles and hardships!" Would you give it to your child? Would you? ... At this point in my journey, I can honestly say no." (3/19/09)
From Life With My Special Ks: "SO if some scientist came up with a magic pill and said, "If you give this pill to your child, it would take away Down syndrome! It would take away the developmental delays! It would take away all your child's struggles and hardships!" Would you give it to your child? Would you? ... At this point in my journey, I can honestly say no." (3/19/09)
Resource of the Week: Light at the End of the Tunnel Pamphlet
From About.com Down Syndrome: "I think that one of the hardest things about learning that your baby has Down syndrome while you are pregnant is that you have a diagnosis but not a baby." (3/16/09)
From About.com Down Syndrome: "I think that one of the hardest things about learning that your baby has Down syndrome while you are pregnant is that you have a diagnosis but not a baby." (3/16/09)
World Down Syndrome Day
From About.com Down Syndrome: "World Down Syndrome Day, started by Down Syndrome International (DSI) is next Saturday, March 21st . The date was chosen as a reflection of the chromosome abnormality that underlies the diagnosis of Down syndrome - trisomy 21 or 3/21's." (3/16/09)
From About.com Down Syndrome: "World Down Syndrome Day, started by Down Syndrome International (DSI) is next Saturday, March 21st . The date was chosen as a reflection of the chromosome abnormality that underlies the diagnosis of Down syndrome - trisomy 21 or 3/21's." (3/16/09)
Karyotyping and Why It's Important
From About.com Down Syndrome: "A karyotype test is a critical step in determining if someone has Down syndrome." (3/16/09)
From About.com Down Syndrome: "A karyotype test is a critical step in determining if someone has Down syndrome." (3/16/09)
Down syndrome - When did you find out?
From Life With My Special Ks: "If you could turn back the hands of time, or if you were pregnant again, would you want to be aware of your child having DS in advance or finding out after delivery?" (3/16/09)
From Life With My Special Ks: "If you could turn back the hands of time, or if you were pregnant again, would you want to be aware of your child having DS in advance or finding out after delivery?" (3/16/09)
Genes Day Updates!
From Mosaic Moments: "World Down Syndrome Day is just one week away! On March 21st people throughout the world will be celebrating this day is so many ways. International Mosaic Down Syndrome Association is celebrating with their 3rd annual Genes Day." (3/15/09)
From Mosaic Moments: "World Down Syndrome Day is just one week away! On March 21st people throughout the world will be celebrating this day is so many ways. International Mosaic Down Syndrome Association is celebrating with their 3rd annual Genes Day." (3/15/09)
Eliminating Down syndrome population: A good thing?
From Disability News: "Would it be a good thing if new, more accurate blood tests help bring about the elimination of all people with Down syndrome? In answer to that question, bioethicist Art Caplan of the University of Pennsylvania tells Good Day Philadelphia on Fox 29 News he's not sure." (3/12/09)
From Disability News: "Would it be a good thing if new, more accurate blood tests help bring about the elimination of all people with Down syndrome? In answer to that question, bioethicist Art Caplan of the University of Pennsylvania tells Good Day Philadelphia on Fox 29 News he's not sure." (3/12/09)
Genes Day Updates!
From Mosaic Moments: "Everyone is doing so fantastic on their Genes Day teams! I am amazed at all the advocacy that is going on! On our Firstgiving Site we have 19 teams and all are doing so fantastic!" (3/7/09)
From Mosaic Moments: "Everyone is doing so fantastic on their Genes Day teams! I am amazed at all the advocacy that is going on! On our Firstgiving Site we have 19 teams and all are doing so fantastic!" (3/7/09)
Down syndrome advocates lobby on Capitol Hill
From Disability News: "When more than 300 Down syndrome advocates from 35 states gathered at the U.S. Capitol last week, their stated mission was to seek federal funds to help spread accurate information about prenatally diagnosed disabilities." (3/5/09)
From Disability News: "When more than 300 Down syndrome advocates from 35 states gathered at the U.S. Capitol last week, their stated mission was to seek federal funds to help spread accurate information about prenatally diagnosed disabilities." (3/5/09)
Baby with Down syndrome - what do you do? What do you say?
From Mommy Life: "You say congratulations! " (3/4/09)
From Mommy Life: "You say congratulations! " (3/4/09)
Columnist: Granddaughter is just right
From Disability News: "Boston Globe columnist Beverly Beckham challenges a recent article in the Boston Globe Magazine by Adam Wolfberg, who wrote that Down syndrome 'results in mental retardation and often a host of medical problems.'" (3/2/09)
From Disability News: "Boston Globe columnist Beverly Beckham challenges a recent article in the Boston Globe Magazine by Adam Wolfberg, who wrote that Down syndrome 'results in mental retardation and often a host of medical problems.'" (3/2/09)
Elijah and IMDSA
From Hope for Elijah: "Some of our families might remember that in lieu of wedding favors, we donated money towards the International Mosaic Down Syndrome Association. ... In a simple twist of fate we are now not only supporters of this organization, but we will now be on the other side as parents of a child with Down syndrome." (2/28/09)
From Hope for Elijah: "Some of our families might remember that in lieu of wedding favors, we donated money towards the International Mosaic Down Syndrome Association. ... In a simple twist of fate we are now not only supporters of this organization, but we will now be on the other side as parents of a child with Down syndrome." (2/28/09)
Prenatal Testing - Ambivalence, Parenting and Choice
From About.com Down Syndrome: "Almost two-thirds of the parents interviewed rejected prenatal testing because of ambivalence surrounding the information they would receive." (2/26/09)
From About.com Down Syndrome: "Almost two-thirds of the parents interviewed rejected prenatal testing because of ambivalence surrounding the information they would receive." (2/26/09)
New Prenatal Tests - Concerns and Regulations
From About.com Down Syndrome: "No one agency - FDA, CDC, CLIA - is responsible for regulating the companies that are developing these tests, raising concerns about quality control and other testing variables. It is more than a little frightening to think that a test with such profound implications could make it to the marketplace without regulations." (2/24/09)
From About.com Down Syndrome: "No one agency - FDA, CDC, CLIA - is responsible for regulating the companies that are developing these tests, raising concerns about quality control and other testing variables. It is more than a little frightening to think that a test with such profound implications could make it to the marketplace without regulations." (2/24/09)
New concerns raised over impending Down syndrome tests
From Disability News: Questions raised: Why aren't they regulated?" (2/24/09)
From Disability News: Questions raised: Why aren't they regulated?" (2/24/09)
Film starring man with DS tops Australian festival
From Disability News: "'Be My Brother,' a movie starring a man with Down syndrome, got the top prize at Australia's Tropfest festival on Sunday, and star Gerard O'Dwyer was named best actor. The festival is the world's largest celebration of short films." (2/23/09)
From Disability News: "'Be My Brother,' a movie starring a man with Down syndrome, got the top prize at Australia's Tropfest festival on Sunday, and star Gerard O'Dwyer was named best actor. The festival is the world's largest celebration of short films." (2/23/09)
Teammates welcome wrestler with Down syndrome
From Disability News: "Wolfbrandt is one of four students with disabilities at his school who are included in regular classroom environments and in extracurricular activities. He competes in both football and wrestling" (2/22/09).
From Disability News: "Wolfbrandt is one of four students with disabilities at his school who are included in regular classroom environments and in extracurricular activities. He competes in both football and wrestling" (2/22/09).
What Would You Do If Your Fetus Had a 1 in 6 Chance of Down Syndrome?
From the Boston Globe: "Two families, faced with the results from rapidly advancing prenatal tests, grapple with the decision." (2/19/09)
From the Boston Globe: "Two families, faced with the results from rapidly advancing prenatal tests, grapple with the decision." (2/19/09)
Down Syndrome Doesn't Stand in the Way of a Manager's Job
From theRecord.com: "Woman with Down syndrome didn't let preconceptions stop her from applying for a promotion." (2/4/09)
From theRecord.com: "Woman with Down syndrome didn't let preconceptions stop her from applying for a promotion." (2/4/09)
Sujeet Desai does not "suffer" from Down syndrome
From Mosaic Moments: Education a reporter about appropriate language. (1/30/09)
From Mosaic Moments: Education a reporter about appropriate language. (1/30/09)
Tough decisions about future of young adults with DS
From Disability News: "Because of advances in medical care, many people with Down syndrome are now expected to outlive their parents." (1/29/09)
From Disability News: "Because of advances in medical care, many people with Down syndrome are now expected to outlive their parents." (1/29/09)
World Down Syndrome Day
The blog Mosaic Moments reminds us that it's coming up on March 21. (1/27/09)
The blog Mosaic Moments reminds us that it's coming up on March 21. (1/27/09)
Term of the Week - High-Functioning
From About.com Down Syndrome: "While this phrase is commonly used to describe some individuals with Down syndrome, I was surprised that there is no formal medical, psychological or other criteria defining exactly what makes a person high-functioning." (1/24/09)
From About.com Down Syndrome: "While this phrase is commonly used to describe some individuals with Down syndrome, I was surprised that there is no formal medical, psychological or other criteria defining exactly what makes a person high-functioning." (1/24/09)
The New White House Agenda on Disabilities
From About.com Down Syndrome: "It will be interesting to see how the White House goes about implementing this agenda. Are you hopeful that their will be major changes in the support of people with disabilities in the next four years?" (1/23/09)
From About.com Down Syndrome: "It will be interesting to see how the White House goes about implementing this agenda. Are you hopeful that their will be major changes in the support of people with disabilities in the next four years?" (1/23/09)
How Do Chromosomes Find Each Other? New Study Sheds Some Light
From About.com Down Syndrome: "While this may all sound a bit sci-fi and high-tech, it is actually a very exciting first step in understanding why chromosome division sometimes goes awry, leading to conditions such as trisomy 21 and other chromosome abnormalities." (1/23/09)
From About.com Down Syndrome: "While this may all sound a bit sci-fi and high-tech, it is actually a very exciting first step in understanding why chromosome division sometimes goes awry, leading to conditions such as trisomy 21 and other chromosome abnormalities." (1/23/09)
Actors with Down Syndrome to Appear on "House"
From Winter Ramblings: "The two young actors with Down syndrome included in the episode entitled "Big Baby" and airing Monday, January 26th, are Matthew Von Der Ahe and Tim Borqueze. The boys, appear as students in a special education classroom and comfort their teacher after she collapses." (1/23/09)
From Winter Ramblings: "The two young actors with Down syndrome included in the episode entitled "Big Baby" and airing Monday, January 26th, are Matthew Von Der Ahe and Tim Borqueze. The boys, appear as students in a special education classroom and comfort their teacher after she collapses." (1/23/09)
Explaining Mosaic Down Syndrome: Undiagnosed
From Mosaic Moments: "So, if you suspect that your child has mosaic Down syndrome, then talk with your doctor. Tell them what you have learned about it and tell them you would like to have a test done." (1/17/09)
From Mosaic Moments: "So, if you suspect that your child has mosaic Down syndrome, then talk with your doctor. Tell them what you have learned about it and tell them you would like to have a test done." (1/17/09)
What does she know?
From Garden of Eagan: "Angela completely understands that there are a lot of people who look a lot like her because they have DS." (1/16/09)
From Garden of Eagan: "Angela completely understands that there are a lot of people who look a lot like her because they have DS." (1/16/09)
Did you receive a prenatal DS diagnosis?
From Pinwheels: A researcher is looking for parents to share their experience. (1/16/09)
From Pinwheels: A researcher is looking for parents to share their experience. (1/16/09)
Explaining Mosaic Down Syndrome: Getting A Proper Diagnosis
From Mosaic Moments: "First, keep in mind that most doctors are not knowledgeable on this rare form of Down syndrome, so the majority have no information on it at all, unless International Mosaic Down Syndrome Association has provided them with that information." (1/16/09)
From Mosaic Moments: "First, keep in mind that most doctors are not knowledgeable on this rare form of Down syndrome, so the majority have no information on it at all, unless International Mosaic Down Syndrome Association has provided them with that information." (1/16/09)
Explaining Mosaic Down Syndrome: Misdiagnosis
From Mosaic Moments: "I have heard from some medical professionals that it is impossible to diagnose mosaic Down syndrome because they would have to take samples from the brain, the heart, the bone marrow and every other organ in the body. This is FALSE!" (1/15/09)
From Mosaic Moments: "I have heard from some medical professionals that it is impossible to diagnose mosaic Down syndrome because they would have to take samples from the brain, the heart, the bone marrow and every other organ in the body. This is FALSE!" (1/15/09)
Explaining Mosaic Down Syndrome: How it Happens
From Mosaic Moments: "To begin this series of information on mosaic Down syndrome, I think it is first best to understand how mosaic Down syndrome actually happens when you compare it to Down syndrome." (1/14/09)
From Mosaic Moments: "To begin this series of information on mosaic Down syndrome, I think it is first best to understand how mosaic Down syndrome actually happens when you compare it to Down syndrome." (1/14/09)
Yonker's Joe: New movie about Down syndrome
From About.com Down Syndrome: "A new movie, Yonker's Joe, was released on Friday that features a main character with Down Syndrome. Tom Guiry, plays Joe Jr. the son of Yonker's Joe, a con man with few scruples played by Chazz Palminteri." (1/13/09)
From About.com Down Syndrome: "A new movie, Yonker's Joe, was released on Friday that features a main character with Down Syndrome. Tom Guiry, plays Joe Jr. the son of Yonker's Joe, a con man with few scruples played by Chazz Palminteri." (1/13/09)
Do you Blog About Your Child with Down Syndrome?
From About.com Down Syndrome: "Many of these blogs started out as a communication tool with far-flung friends and family, but they seem to have evolved into something else. Is there something therapeutic about blogging about your life? Does it allow you to connect to a larger community? I would love to here from readers out there who have a personal blog!" (1/12/09)
From About.com Down Syndrome: "Many of these blogs started out as a communication tool with far-flung friends and family, but they seem to have evolved into something else. Is there something therapeutic about blogging about your life? Does it allow you to connect to a larger community? I would love to here from readers out there who have a personal blog!" (1/12/09)
Down Syndrome Our Journey Together
From Mosaic Moments: "I can honestly say that I have never been to a message board or email group for families of children with Down syndrome or mosaic Down syndrome that the families were not completely welcoming and caring to one another. It is as if, we all have this very special, unbreakable bond that holds us together." (1/11/09)
From Mosaic Moments: "I can honestly say that I have never been to a message board or email group for families of children with Down syndrome or mosaic Down syndrome that the families were not completely welcoming and caring to one another. It is as if, we all have this very special, unbreakable bond that holds us together." (1/11/09)
Answering Down syndrome Questions
From Mosaic Moments: "One of the questions that came to me today was 'If my sibling has Down syndrome, will my child have Down syndrome?' The answer is 'more than likely not.'" (1/9/09)
From Mosaic Moments: "One of the questions that came to me today was 'If my sibling has Down syndrome, will my child have Down syndrome?' The answer is 'more than likely not.'" (1/9/09)
Term of the Week: Atlantoaxial Instability
From About.com Down Syndrome: "Atlantoaxial instability (at-lan-toe-ax-ee-ul instability), often referred to as AAI, is a condition affecting the two bones at the top of the spinal cord. About 15% of people with Down syndrome will have AAI diagnosed on an x-ray." (1/7/08)
From About.com Down Syndrome: "Atlantoaxial instability (at-lan-toe-ax-ee-ul instability), often referred to as AAI, is a condition affecting the two bones at the top of the spinal cord. About 15% of people with Down syndrome will have AAI diagnosed on an x-ray." (1/7/08)
Aricept Study for Down syndrome Canceled
From Mosaic Moments: "A 10-Week, Double-Blind, Placebo-Controlled Study To Evaluate The Efficacy And Safety Of Donepezil Hydrochloride (Aricept) In The Treatment Of The Cognitive Dysfunction Exhibited By Children With Down Syndrome, Aged 11 To 17 has been canceled." (1/6/09)
From Mosaic Moments: "A 10-Week, Double-Blind, Placebo-Controlled Study To Evaluate The Efficacy And Safety Of Donepezil Hydrochloride (Aricept) In The Treatment Of The Cognitive Dysfunction Exhibited By Children With Down Syndrome, Aged 11 To 17 has been canceled." (1/6/09)
It's Official - Bert Holbook Oldest Person with Down Syndrome
From About.com Down Syndrome: "At the age of 80, Mr. Holbrook has been recognized as the oldest living person with Down syndrome by the Guinness Book of World Records." (1/5/09)
From About.com Down Syndrome: "At the age of 80, Mr. Holbrook has been recognized as the oldest living person with Down syndrome by the Guinness Book of World Records." (1/5/09)
My Picks: Top Five News Stories Featuring Down Syndrome
Trig Palin tops this list from the About.com guide to Down syndrome. (1/2/09)
Trig Palin tops this list from the About.com guide to Down syndrome. (1/2/09)
New Parents of children with Down syndrome
The blog Mosaic Moments responds to a comment from a new Grandma. (12/31/08)
The blog Mosaic Moments responds to a comment from a new Grandma. (12/31/08)
Prenatal test for DS among year's top science stories
From Disability News: "Test tubes, photo from FoxNewsReports of a first-trimester blood test that could accurately diagnose Down syndrome in utero have made the lists of the top science stories of the year, as compiled by ABC News and Fox News." (12/29/08)
From Disability News: "Test tubes, photo from FoxNewsReports of a first-trimester blood test that could accurately diagnose Down syndrome in utero have made the lists of the top science stories of the year, as compiled by ABC News and Fox News." (12/29/08)
Baylor fetal DNA test stirs controversy
From Disability News: "Baylor College of Medicine is offering and promoting a new prenatal test that screens fetuses for hundreds of genetic abnormalities. The test is promoted as diagnosing disorders that couldn't previously be identified in utero, and is 'sparking debate because it's sure to result in more abortions.'" (12/22/08)
From Disability News: "Baylor College of Medicine is offering and promoting a new prenatal test that screens fetuses for hundreds of genetic abnormalities. The test is promoted as diagnosing disorders that couldn't previously be identified in utero, and is 'sparking debate because it's sure to result in more abortions.'" (12/22/08)
Wasecan may be worlds oldest man with Down Syndrome
From Waseca County News: "In 1929, one year after the birth of a son to Bert and Lillian Holbrook of Waseca, people with Down Syndrome lived to an average age of 9 years, according to experts. Institutions were the norm and medical care was minimal." (12/13/08)
From Waseca County News: "In 1929, one year after the birth of a son to Bert and Lillian Holbrook of Waseca, people with Down Syndrome lived to an average age of 9 years, according to experts. Institutions were the norm and medical care was minimal." (12/13/08)
"Knowing Gabriel"
From Disability News: "Journalist Angela Blakston, writing in The Age [Melbourne, Australia], is troubled about the recent recommendation by experts in Australia that all pregnant women should be offered screening for Down syndrome. Blakston fears that universal screening would send a clear message that the lives of people like her son Gabriel are not worth living." (12/11/08)
From Disability News: "Journalist Angela Blakston, writing in The Age [Melbourne, Australia], is troubled about the recent recommendation by experts in Australia that all pregnant women should be offered screening for Down syndrome. Blakston fears that universal screening would send a clear message that the lives of people like her son Gabriel are not worth living." (12/11/08)
The Power of Words
From About.com Down Syndrome: Which term do you prefer, Down syndrome or Trisomy 21?
From About.com Down Syndrome: Which term do you prefer, Down syndrome or Trisomy 21?
New Tests for Down Syndrome Raise Tough Issues
From Newsweek: "Next year ... new, noninvasive genetic screens that pose no harm to fetuses or mothers may start arriving in doctors' offices. If they become common, they could result in more diagnoses, more abortions, a dwindling Down population and a drop in support for families who carry to term." (12/8/08)
From Newsweek: "Next year ... new, noninvasive genetic screens that pose no harm to fetuses or mothers may start arriving in doctors' offices. If they become common, they could result in more diagnoses, more abortions, a dwindling Down population and a drop in support for families who carry to term." (12/8/08)
A Mosaic Moment Mosaic Moments
From Mosaic Moments: "As parents, we all do things that we had no intention in doing, but lets face it! We are busy people! And sometimes we make mistakes." (12/5/08)
From Mosaic Moments: "As parents, we all do things that we had no intention in doing, but lets face it! We are busy people! And sometimes we make mistakes." (12/5/08)
Columnist: BBC misread data on Down syndrome births
From Disability News: "Ben Goldacre, writing the [UK] Guardian's 'Bad Science' Column, says the media goofed when it quoted without question a BBC documentary that claimed more British mothers are knowingly choosing to give birth to babies with Down syndrome." (12/2/08)
From Disability News: "Ben Goldacre, writing the [UK] Guardian's 'Bad Science' Column, says the media goofed when it quoted without question a BBC documentary that claimed more British mothers are knowingly choosing to give birth to babies with Down syndrome." (12/2/08)
Op-ed: "Shame on doctors prejudiced against Down syndrome"
From Disability News: "Columnist Dominic Lawson, writing in the [UK] Independent, says the medical profession is biased in favor of 'eugenic termination' of fetuses with Down syndrome. Lawson's 13-year-old daughter Domenica has Down syndrome." (12/2/08)
From Disability News: "Columnist Dominic Lawson, writing in the [UK] Independent, says the medical profession is biased in favor of 'eugenic termination' of fetuses with Down syndrome. Lawson's 13-year-old daughter Domenica has Down syndrome." (12/2/08)
Columnist: Abortion for Down syndrome isn't eugenics
Disability News quotes an editorial from the (UK) Sunday Times: "Sad observations over decades have convinced me: a damaged baby is a damaged family, even now. I resent the moral condescension of those who claim that people who think like me are not only wrong but hateful." (12/2/08)
Disability News quotes an editorial from the (UK) Sunday Times: "Sad observations over decades have convinced me: a damaged baby is a damaged family, even now. I resent the moral condescension of those who claim that people who think like me are not only wrong but hateful." (12/2/08)
Australian immigration minister says Moeller family can stay
From Disability News: "The Australian Immigration Minister has stepped in to grant permanent residency to a German doctor's family who had been rejected twice because a son, 13, with Down syndrome was deemed too costly." (12/1/08)
From Disability News: "The Australian Immigration Minister has stepped in to grant permanent residency to a German doctor's family who had been rejected twice because a son, 13, with Down syndrome was deemed too costly." (12/1/08)
National Screening Halves Number of Children Born with Down Syndrome
From AutismVox: "A new national strategy for screening for Down syndrome in Denmark has halved the number of Down Syndrome births and led to a 30% increase in infants diagnosed with the condition." (12/1/08)
From AutismVox: "A new national strategy for screening for Down syndrome in Denmark has halved the number of Down Syndrome births and led to a 30% increase in infants diagnosed with the condition." (12/1/08)
New Trend in Down Syndrome
From About.com Down Syndrome: "BBC News is reporting that incidence of Down syndrome is increasing despite prenatal screening. This increase is attributed to the fact that more parents are electing to keep their babies with Down syndrome after a prenatal diagnosis." (11/30/08)
From About.com Down Syndrome: "BBC News is reporting that incidence of Down syndrome is increasing despite prenatal screening. This increase is attributed to the fact that more parents are electing to keep their babies with Down syndrome after a prenatal diagnosis." (11/30/08)
Do People With Down syndrome Suffer?
From Mosaic Moments: "My answer is 'yes,' but not the way most people who do not have a child with Down syndrome or mosaic Down syndrome think." (11/26/08)
From Mosaic Moments: "My answer is 'yes,' but not the way most people who do not have a child with Down syndrome or mosaic Down syndrome think." (11/26/08)
Parents who give up their Down's syndrome children
From Times Online: "Sue admits that, because of her age, her ignorance of disability and the stigma that surrounded conditions such as Down's, she 'couldn't cope' and put Nathan up for adoption. It's a decision that she has struggled with ever since." (11/25/08)
From Times Online: "Sue admits that, because of her age, her ignorance of disability and the stigma that surrounded conditions such as Down's, she 'couldn't cope' and put Nathan up for adoption. It's a decision that she has struggled with ever since." (11/25/08)
Births of Down's Syndrome Children Up in the UK
From AutismVox: "While most women who receive a prenatal diagnosis of Down's Syndrome choose not to have the child, many are now deciding to give birth." (11/25/08)
From AutismVox: "While most women who receive a prenatal diagnosis of Down's Syndrome choose not to have the child, many are now deciding to give birth." (11/25/08)
Down Syndrome Barbie
From 5 Minutes for Special Needs: "Does the idea make you think, 'Whoopee, where can I buy one?' or, 'Oh God, my worst nightmare has just been realised.'" (11/20/08)
From 5 Minutes for Special Needs: "Does the idea make you think, 'Whoopee, where can I buy one?' or, 'Oh God, my worst nightmare has just been realised.'" (11/20/08)
Mystery Diagnosis: Mosaic Translocation Down Syndrome
From Mosaic Moments: "Mosaic Down syndrome can sometimes be a Mystery Diagnosis because many go years without the diagnosis and unfortunately in some cases they are diagnosed when a serious health problem occurs." (11/15/08)
From Mosaic Moments: "Mosaic Down syndrome can sometimes be a Mystery Diagnosis because many go years without the diagnosis and unfortunately in some cases they are diagnosed when a serious health problem occurs." (11/15/08)
Does your child with Down syndrome over eat?
From Mosaic Moments: "From the time Tim, my son with mosaic Down syndrome, was very young he never seemed to know when he was full. He would eat until he would get sick. And, if I didn't watch him carefully, he would sneak food out of the refrigerator or cabinets and eat everything in sight!" (11/13/08)
From Mosaic Moments: "From the time Tim, my son with mosaic Down syndrome, was very young he never seemed to know when he was full. He would eat until he would get sick. And, if I didn't watch him carefully, he would sneak food out of the refrigerator or cabinets and eat everything in sight!" (11/13/08)
Man With Down Syndrome Becomes Eagle Scout
From WBAL-TV: "A 41-year-old man with Down Syndrome has achieved the Boy Scout's highest rank." (11/12/08)
From WBAL-TV: "A 41-year-old man with Down Syndrome has achieved the Boy Scout's highest rank." (11/12/08)
U.S. hospital attempts to deport infant with DS
From Disability News: "In a story about the haphazard way in which the American health care system handles cases involving uninsured immigrants, the New York Times documents efforts by an Arizona hospital to deport a baby with Down syndrome and a heart problem to Mexico against his parents' wishes." (11/11/08)
From Disability News: "In a story about the haphazard way in which the American health care system handles cases involving uninsured immigrants, the New York Times documents efforts by an Arizona hospital to deport a baby with Down syndrome and a heart problem to Mexico against his parents' wishes." (11/11/08)
Down syndrome, adoption, and the Curtis Family
Barbara Curtis, who blogs at Mommy Life, and her family -- including four children with Down syndrome, three of them adopted -- were profiled recently in the Washington Post. (11/10/08)
Barbara Curtis, who blogs at Mommy Life, and her family -- including four children with Down syndrome, three of them adopted -- were profiled recently in the Washington Post. (11/10/08)
Adoptions of children with Down syndrome are on the rise
From Disability News: "Even as most prenatal diagnoses of Down syndrome lead to abortion, more families are seeking to adopt children with the condition. Almost 200 families are on waiting lists to adopt a child with Down syndrome in the United States, and others are seeking overseas adoptions." (11/10/08)
From Disability News: "Even as most prenatal diagnoses of Down syndrome lead to abortion, more families are seeking to adopt children with the condition. Almost 200 families are on waiting lists to adopt a child with Down syndrome in the United States, and others are seeking overseas adoptions." (11/10/08)
Longer lives for people with DS bring rewards, risks
From Disability News: "As people with Down syndrome live longer, healthier lives, their parents are working with greater urgency to try to help them achieve independence. Adult services, like supervisory programs and group homes, are scarce." (11/10/08)
From Disability News: "As people with Down syndrome live longer, healthier lives, their parents are working with greater urgency to try to help them achieve independence. Adult services, like supervisory programs and group homes, are scarce." (11/10/08)
More on Denying Residency Because of Down Syndrome
From Mosaic Moments: "Today's news brings a story of a British midwife who was invited to Australia to offer her services to the country, but, like Dr. Moeller, she has been denied permanent residency because she has a child with Down syndrome." (11/9/08)
From Mosaic Moments: "Today's news brings a story of a British midwife who was invited to Australia to offer her services to the country, but, like Dr. Moeller, she has been denied permanent residency because she has a child with Down syndrome." (11/9/08)
Most Parents Don't Overreact to Child Gene Tests
From HealthDay: "They weigh the results as they do family history, study finds." (11/5/08)
From HealthDay: "They weigh the results as they do family history, study finds." (11/5/08)
Gupta: Children with DS face "frustrating stereotypes"
From Disability News: On CNN's House Call, Dr. Sanjay Gupta says children with Down syndrome are living longer and contributing to the workforce, thanks to early intervention and therapy, but they still face 'frustrating stereotypes.'" (11/2/08)
From Disability News: On CNN's House Call, Dr. Sanjay Gupta says children with Down syndrome are living longer and contributing to the workforce, thanks to early intervention and therapy, but they still face 'frustrating stereotypes.'" (11/2/08)
First person: "Haunted by my lost son"
From Disability News: "Isn't it time, she asks, to stop seeing abortion as the only solution when a fetus is not "perfect"? (11/1/08)
From Disability News: "Isn't it time, she asks, to stop seeing abortion as the only solution when a fetus is not "perfect"? (11/1/08)
Demands rise to let doctor stay
From Disability News: "Australia's government is under pressure from all sides to overturn a decision denying German doctor Bernhard Moeller permanent residency because his son Lukas has Down syndrome." (11/1/08)
From Disability News: "Australia's government is under pressure from all sides to overturn a decision denying German doctor Bernhard Moeller permanent residency because his son Lukas has Down syndrome." (11/1/08)
Australia denies doctor residency because of son's disability
From Disability News: "A German doctor hoping to gain permanent residency in Australia says he plans to fight a government decision to exclude him because his 13-year-old son has Down syndrome." (10/31/08)
From Disability News: "A German doctor hoping to gain permanent residency in Australia says he plans to fight a government decision to exclude him because his 13-year-old son has Down syndrome." (10/31/08)
Down Syndrome Adoption
From Life With My Special Ks: "Did you know that in other countries all over the world, there are children with Down syndrome left to die? In many countries, when a child with DS is placed in an orphanage, they are transitioned to an institution at age Five." (10/29/08)
From Life With My Special Ks: "Did you know that in other countries all over the world, there are children with Down syndrome left to die? In many countries, when a child with DS is placed in an orphanage, they are transitioned to an institution at age Five." (10/29/08)
31 for 21: Meet Josh
From Mosaic Moments: "Josh's story is a true inspiration to so many who have children with Down syndrome, mosaic Down syndrome, or any special need." (10/22/08)
From Mosaic Moments: "Josh's story is a true inspiration to so many who have children with Down syndrome, mosaic Down syndrome, or any special need." (10/22/08)
Three Surprises - Our Unique Perspective on Down syndrome
From CNN: "Around Carter's four-month birthday, we received word that Carter had a genetic condition called Down syndrome. For those of you familiar with Down syndrome, diagnosis is almost always pre-natal or at birth. Four months following birth is an extremely rare and delayed diagnosis. " (10/20/08)
From CNN: "Around Carter's four-month birthday, we received word that Carter had a genetic condition called Down syndrome. For those of you familiar with Down syndrome, diagnosis is almost always pre-natal or at birth. Four months following birth is an extremely rare and delayed diagnosis. " (10/20/08)
One mom's choice: Hide son's condition -- even from him
Disability News links to a broadcast on NPR's This American Life about a child with Mosaic Down syndrome, whose parents chose to keep his diagnosis secret to guard against low expectations. (10/20/08)
Disability News links to a broadcast on NPR's This American Life about a child with Mosaic Down syndrome, whose parents chose to keep his diagnosis secret to guard against low expectations. (10/20/08)
Doctors are prejudiced against babies with DS, columnists say
From Disability News: "They say action is needed to counter a 'decidedly pro-abortion prejudice against babies with disabilities' within the medical establishment. The recently approved Kennedy-Brownback bill is a good start, they say, but training for medical professionals is also needed." (10/16/08)
From Disability News: "They say action is needed to counter a 'decidedly pro-abortion prejudice against babies with disabilities' within the medical establishment. The recently approved Kennedy-Brownback bill is a good start, they say, but training for medical professionals is also needed." (10/16/08)
Adoptive Mother Sentenced to 15 Years in Prison for Death of Son
From Adoption About.com: "Emelyantsev and her husband had three biological children and another adopted child. 3 of the children, including Nicoli, were born with Down syndrome." (10/14/08)
From Adoption About.com: "Emelyantsev and her husband had three biological children and another adopted child. 3 of the children, including Nicoli, were born with Down syndrome." (10/14/08)
Students choose classmate with DS as homecoming queen
From Disability News: "Eighteen-year-old Kristin Pass was voted homecoming queen by members of the senior class at Aledo High School in Aledo, Texas, just west of Fort Worth. Kristin has Down syndrome." (10/12/08)
From Disability News: "Eighteen-year-old Kristin Pass was voted homecoming queen by members of the senior class at Aledo High School in Aledo, Texas, just west of Fort Worth. Kristin has Down syndrome." (10/12/08)
Fun Facts about Down syndrome!
The blog Life With My Special Ks shares some statistics you may not know. (10/11/08)
The blog Life With My Special Ks shares some statistics you may not know. (10/11/08)
Opinion: Informed consent needed in prenatal DS testing
From Disability News: "Mark Henderson, science editor of the [UK] Times, says the prospect of a reliable and risk-free prenatal blood test for Down syndrome points up the need to educate medical professionals on how to counsel prospective parents about the tests and the results." (10/11/08)
From Disability News: "Mark Henderson, science editor of the [UK] Times, says the prospect of a reliable and risk-free prenatal blood test for Down syndrome points up the need to educate medical professionals on how to counsel prospective parents about the tests and the results." (10/11/08)
Columnist raps public "intolerance for imperfection"
From Disability News: "Writing in the American Spectator, Daniel Allott says high rates of selective abortion of fetuses with Down syndrome reveal 'a culture increasingly unaccepting and intolerant of children with developmental disabilities, who often face brutal and sometimes deadly prejudice.'" (10/10/08)
From Disability News: "Writing in the American Spectator, Daniel Allott says high rates of selective abortion of fetuses with Down syndrome reveal 'a culture increasingly unaccepting and intolerant of children with developmental disabilities, who often face brutal and sometimes deadly prejudice.'" (10/10/08)
"Dancing with the Stars" pro leads dance for people with DS
From Disability News: "People with Down syndrome came from all around Southern California Wednesday to take part in a dance class led by Kym Johnson, one of the professional dancers from the ABC television show 'Dancing with the Stars.'" (10/10/08)
From Disability News: "People with Down syndrome came from all around Southern California Wednesday to take part in a dance class led by Kym Johnson, one of the professional dancers from the ABC television show 'Dancing with the Stars.'" (10/10/08)
It's official: President signs disability diagnosis bill
From Disability News: The bill "authorizes the Department of Health and Human Services to establish a grant program to collect and disseminate information regarding Down syndrome or other prenatally or postnatally diagnosed diseases and to coordinate the provision of support services for those who receive a diagnosis of one of those diseases." (10/9/08)
From Disability News: The bill "authorizes the Department of Health and Human Services to establish a grant program to collect and disseminate information regarding Down syndrome or other prenatally or postnatally diagnosed diseases and to coordinate the provision of support services for those who receive a diagnosis of one of those diseases." (10/9/08)
In the Forum: Down Syndrome
A mother who has just received a diagnosis through prenatal testing asks for advice. (10/8/08)
A mother who has just received a diagnosis through prenatal testing asks for advice. (10/8/08)
New genetic fetus test reduces miscarriage risk: study
From AFP: "A new prenatal test to detect genetic disorders such as Down's Syndrome could render current riskier procedures 'obsolete,' according to new research published Monday. The new method, developed by researchers at Stanford University and the Howard Hughes Medical Institute, California requires a simple blood sample from the mother to spot chromosomal disorders." (10/7/08)
From AFP: "A new prenatal test to detect genetic disorders such as Down's Syndrome could render current riskier procedures 'obsolete,' according to new research published Monday. The new method, developed by researchers at Stanford University and the Howard Hughes Medical Institute, California requires a simple blood sample from the mother to spot chromosomal disorders." (10/7/08)
Informed Decisions
From Life With Joey: "In all those 'So You're Expecting!' books, we ought to have a chapter, "What if my baby has special needs?" The opening of that chapter should be: 'All people have special needs. The trick is knowing what resources are available, and how to use those resources to best support and raise your child.' (10/7/08)
From Life With Joey: "In all those 'So You're Expecting!' books, we ought to have a chapter, "What if my baby has special needs?" The opening of that chapter should be: 'All people have special needs. The trick is knowing what resources are available, and how to use those resources to best support and raise your child.' (10/7/08)
Let's change our focus regarding Down syndrome
From StarTribune.com: "The constructive debate isn't about bringing such children into the world, but about helping them, and their parents, make their way in the world." (10/4/08)
From StarTribune.com: "The constructive debate isn't about bringing such children into the world, but about helping them, and their parents, make their way in the world." (10/4/08)
Sam Brownback: Special needs call for special attention
From Disability News: "Writing in the National Review, Sen. Sam Brownback (R-Kansas) says a bill he successfully co-sponsored with Sen. Ted Kennedy (D-Mass.) will help deflect a "eugenics mentality" that threatens to eliminate a whole class of people -- children with Down syndrome -- before they can be born." (10/1/08)
From Disability News: "Writing in the National Review, Sen. Sam Brownback (R-Kansas) says a bill he successfully co-sponsored with Sen. Ted Kennedy (D-Mass.) will help deflect a "eugenics mentality" that threatens to eliminate a whole class of people -- children with Down syndrome -- before they can be born." (10/1/08)
New priorities needed in Down syndrome research, writer says
From Disability News: "Writing in The Lancet ... Kelly Morris says life expectancy for people with Down syndrome has improved dramatically over the past half century, yet research to improve health, cognition and learning among people with Down syndrome has not kept pace. Many in the field say such research has been neglected and underfunded." (10/1/08)
From Disability News: "Writing in The Lancet ... Kelly Morris says life expectancy for people with Down syndrome has improved dramatically over the past half century, yet research to improve health, cognition and learning among people with Down syndrome has not kept pace. Many in the field say such research has been neglected and underfunded." (10/1/08)
Down Syndrome and College
From About.com Learning Disabilities: "Not so long ago, a diagnosis of Down syndrome meant an automatic placement in a fully self-contained special education classroom, if not a special school or residential treatment facility. More and more, however, educators and parents are recognizing that many children with Down syndrome can lead full lives." (10/1/08)
From About.com Learning Disabilities: "Not so long ago, a diagnosis of Down syndrome meant an automatic placement in a fully self-contained special education classroom, if not a special school or residential treatment facility. More and more, however, educators and parents are recognizing that many children with Down syndrome can lead full lives." (10/1/08)
Prom king with Down syndrome goes to college
From Disability News: "Nineteen-year-old Zach Wincent of St. Charles, Illinois, has a satisfying life. He was prom king in high school, now attends community college and works at Target. Zach's life demonstrates the improved circumstances of people with Down syndrome in the United States, thanks to advances in education and medical care." (10/1/08)
From Disability News: "Nineteen-year-old Zach Wincent of St. Charles, Illinois, has a satisfying life. He was prom king in high school, now attends community college and works at Target. Zach's life demonstrates the improved circumstances of people with Down syndrome in the United States, thanks to advances in education and medical care." (10/1/08)
Santorum: "Imperfect" children remind us of deeper truths
From Disability News: Former Pennsylvania senator Rick Santorum writes of his family's experience in the Philadelphia Inquirer. (9/27/08)
From Disability News: Former Pennsylvania senator Rick Santorum writes of his family's experience in the Philadelphia Inquirer. (9/27/08)
The News About Jo Jo
From Parenting.com: "One mom shares the experience of her daughter's down syndrome diagnosis." (9/26/08)
From Parenting.com: "One mom shares the experience of her daughter's down syndrome diagnosis." (9/26/08)
Senate passes disability diagnosis bill
From Disability News: "The bill, known as the Prenatally and Postnatally Diagnosed Conditions Awareness Act, represents a rare moment when advocates on opposing sides of the abortion debate join forces." (9/24/08)
From Disability News: "The bill, known as the Prenatally and Postnatally Diagnosed Conditions Awareness Act, represents a rare moment when advocates on opposing sides of the abortion debate join forces." (9/24/08)
Millions will go into creating institute for Down syndrome
From Disability News: "Retired cable television executive John Sie and his wife, Anna, have announced a commitment of $34 million to create the best research facility in the world to study Down syndrome. The Sies are grandparents to five-year-old Sophia, who has the condition." (9/23/08)
From Disability News: "Retired cable television executive John Sie and his wife, Anna, have announced a commitment of $34 million to create the best research facility in the world to study Down syndrome. The Sies are grandparents to five-year-old Sophia, who has the condition." (9/23/08)
Legislators "on special mission" with kids with Down syndrome
Disability News links to stories in Roll Call and Politico on "the three members of Congress who have children with Down syndrome." (9/19/08)
Disability News links to stories in Roll Call and Politico on "the three members of Congress who have children with Down syndrome." (9/19/08)
A Special Joy 7: Babies With Down Syndrome
Got a cute photo of a baby with Down syndrome? Parenting wants to showcase it in a gallery in honor of National Down Syndrome Awareness Month in October. (9/18/08)
Got a cute photo of a baby with Down syndrome? Parenting wants to showcase it in a gallery in honor of National Down Syndrome Awareness Month in October. (9/18/08)
Scientists: Tests for DS pose risks to all babies
From Disability News: "New research reports that risks in diagnosing Down syndrome prenatally are higher than previously believed, with two healthy babies being miscarried for every three unborn babies with Down syndrome prevented from being born." (9/14/08)
From Disability News: "New research reports that risks in diagnosing Down syndrome prenatally are higher than previously believed, with two healthy babies being miscarried for every three unborn babies with Down syndrome prevented from being born." (9/14/08)
Man with Down syndrome is going for the record; He's 80
From Disability News: "When Holbrook was born in 1929, the life expectancy for people with Down syndrome was nine years old." (9/3/08)
From Disability News: "When Holbrook was born in 1929, the life expectancy for people with Down syndrome was nine years old." (9/3/08)
A Little More: What not to say
A post from the blog ParentDish looks at the difficulty new parents may have in sharing news of a child's disability. (8/22/08)
A post from the blog ParentDish looks at the difficulty new parents may have in sharing news of a child's disability. (8/22/08)
Shining hope for her son with Down syndrome
Thanks to Fred for sending me the link to this L.A. Times piece, about a hopeful view of the future bringing comfort to the parent of a baby with Down syndrome. (8/11/08)
Thanks to Fred for sending me the link to this L.A. Times piece, about a hopeful view of the future bringing comfort to the parent of a baby with Down syndrome. (8/11/08)
Man gets prison in ID theft of man with Down syndrome
"You prey on vulnerable persons to finance a lifestyle by llegitimate means," said the judge, who passed down a sentence of 4.5 years in jail and $25,763 to pay back. (7/23/08)
"You prey on vulnerable persons to finance a lifestyle by llegitimate means," said the judge, who passed down a sentence of 4.5 years in jail and $25,763 to pay back. (7/23/08)
Special-Needs Business Profile - SPECS4US
The latest Enterprising Parents profile is of Maria Dellapina, who designs eyeglass frames to fit the faces of kids with Down syndrome. (7/21/08)
The latest Enterprising Parents profile is of Maria Dellapina, who designs eyeglass frames to fit the faces of kids with Down syndrome. (7/21/08)
Columnist: Sarah Palin should be on McCain short list
The Alaska governor, a mother of five including a newborn with Down syndrome, is still being talked up as a possible dark horse for Veep. (7/20/08)
The Alaska governor, a mother of five including a newborn with Down syndrome, is still being talked up as a possible dark horse for Veep. (7/20/08)
Parents' fury at 'Down's Syndrome dolls'
Are dolls that portray children with disabilities a way to make kids feel better about themselves, a fun educational tool, or a horrendous insult? They seem harmless enough to me -- or, I suppose, no more harmful than any other doll. (7/8/08)
Are dolls that portray children with disabilities a way to make kids feel better about themselves, a fun educational tool, or a horrendous insult? They seem harmless enough to me -- or, I suppose, no more harmful than any other doll. (7/8/08)
Bookstore CEO's Daughter Is Down Syndrome Advocate
Here's something to think about the next time you walk into one of those monster-mega-bookstores: Did you know that Steve Riggio, CEO of Barnes & Noble, has a daughter with Down syndrome? Her name is Melissa, she's 18, and she's made it a mission to show others that people with Down syndrome are not so different and can lead normal lives. (3/9/07)
Here's something to think about the next time you walk into one of those monster-mega-bookstores: Did you know that Steve Riggio, CEO of Barnes & Noble, has a daughter with Down syndrome? Her name is Melissa, she's 18, and she's made it a mission to show others that people with Down syndrome are not so different and can lead normal lives. (3/9/07)
Drug May Counteract Down Syndrome
"Researchers may have finally found a drug candidate for reducing the mental retardation caused by Down syndrome, which afflicts more than 350,000 people in the U.S. Researchers gave low doses of a human drug to mice bred to mimic the learning and memory problems in people with Down syndrome." (2/25/07)
"Researchers may have finally found a drug candidate for reducing the mental retardation caused by Down syndrome, which afflicts more than 350,000 people in the U.S. Researchers gave low doses of a human drug to mice bred to mimic the learning and memory problems in people with Down syndrome." (2/25/07)
ACOG Says All Pregnancies Should Be Evaluated for Down's - CME Teachin
"All pregnant women regardless of age should be offered screening for Down's syndrome before the 20th week of pregnancy, according to new recommendations from the American College of Obstetricians and Gynecologists (ACOG)." (1/2/07)
"All pregnant women regardless of age should be offered screening for Down's syndrome before the 20th week of pregnancy, according to new recommendations from the American College of Obstetricians and Gynecologists (ACOG)." (1/2/07)
Gynecologist May Support Patient's Child
"The Austrian Supreme Court has ordered a lower tribunal to consider whether a gynecologist accused of failing to give complete information about a high-risk pregnancy should pay child support after his patient gave birth to a disabled child." (7/12/06)
"The Austrian Supreme Court has ordered a lower tribunal to consider whether a gynecologist accused of failing to give complete information about a high-risk pregnancy should pay child support after his patient gave birth to a disabled child." (7/12/06)
Down syndrome children in demand for adoption
According to an Associated Press story, children with Down syndrome are in demand, with waiting lists months or even years long. (2/6/06)
According to an Associated Press story, children with Down syndrome are in demand, with waiting lists months or even years long. (2/6/06)
The trouble with genetic testing
What does the new test that detects Down syndrome in the first trimester mean to families who already have children with the genetic disorder? (11/22/05)
What does the new test that detects Down syndrome in the first trimester mean to families who already have children with the genetic disorder? (11/22/05)