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Preparing the School for Your Child with Fragile X Syndrome

By Terri Mauro, About.com

Teachers can be great allies in keeping your child with Fragile X safe and successful in school, but you'll need to make sure they have all the knowledge they need to help. Use these suggestions to create a information packet to bring educators up to speed.

Five Things Teachers Need to Know

1. My child needs structure and routine in order to function. Please try to keep his world as predictable as possible.

2. If there will be any sort of change in my child's classroom or routine, please notify me as far in advance as possible so that we can all work together in preparing her for it.

3. My child may respond to sounds, sights, or sensations that aren't apparent to others -- a little detective work can head off troublesome behavior.

4. My child is an individual, not a diagnosis. Please be alert and receptive to the things that make him unique and special.

5. Please keep the lines of communication open between our home and the school. My child needs all the adults in her life working together.

Printouts to Share with Teachers

Lesson Planning Guide for Students with Fragile X Syndrome
Source: The National Fragile X Foundation

Primary Instructional Goals for Children With FXS
Source: Carolina Fragile X Project

Recommendations of Early Interventionists & Teachers of Boys with FXS
Source: Carolina Fragile X Project

Fragile X Syndrome and School Behavior
Source: SchoolNurse.com

Adapted Physical Education Fact Sheet
Source: TAHPERD


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