Before You Look for Information on Fragile X

Sorting through the wealth of online information on Fragile X can be a daunting task. What's worth reading, and what's a waste of time? Start with this recommended list of resources to find the information you need to understand and help your child.

On this Parenting Special Needs site

There are lots of articles on this site of interest to parents of children with Fragile X, but these three will give you a good place to begin.

Around the About network

There's information on Fragile X all around About.com. These three sites will give you a good start.

Just the facts

These reference sites give good overviews of Fragile X diagnosis and treatment.

U.S. organizations

These U.S.-based organizations offer information, services and support to individuals with Fragile X and their families.

International organizations

Organizations around the world provide support and information for families of children with Fragile X. Start with these three.

Sites for parents

These sites with a wide range of special-needs information include useful articles on Fragile X.

Research and testing

These sites give details of medical aspects of Fragile X research and genetic testing.

Family stories

Look here for stories about life as, and with, a child with Fragile X Syndrome.