Before You Look for Information on Hemophilia

Sorting through the wealth of online information on hemophilia can be a daunting task. What's worth reading, and what's a waste of time? Start with this recommended list of resources to find the information you need to understand and help your child.

On this Parenting Special Needs site

There are lots of articles on this site of interest to parents of children with hemophilia, but these three will give you a good place to begin.

Around the About network

There's information on hemophilia all around About.com. These three sites will give you a good start.

Just the facts

These reference sites give good overviews of hemophilia diagnosis and treatment.

U.S. organizations

These U.S.-based organizations offer information, services and support to individuals with hemophilia and their families.

International organizations

Organizations around the world provide support and information for families of children with hemophilia. Start with these three.

Dedicated sites

These sites from drug and equipment manufacturers focus exclusively on hemophilia and offer articles and other resources for parents and families.

For parents

These sites, by parents and for parents, offer information and support from families who have been there.

For children

These sites offer information on hemophilia in a fun package for children and teens.

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