Before You Look for Information on Muscular Dystrophy

Sorting through the wealth of online information on Muscular Dystrophy can be a daunting task. What's worth reading, and what's a waste of time? Start with this recommended list of resources to find the information you need to understand and help your child.

On this Parenting Special Needs site

There are lots of articles on this site of interest to parents of children with Muscular Dystrophy, but these three will give you a good place to begin.

Around the About network

There's information on Muscular Dystrophy all around About.com. These three sites will give you a good start.

Just the facts

These reference sites give good overviews of Muscular Dystrophy diagnosis and treatment.

U.S. organizations

These U.S.-based organizations offer information, services and support to individuals with MD and their families.

International organizations

Organizations around the world provide support and information for families of children with Muscular Dystrophy. Start with these three.

Research and testing

These sites offer information on Muscular Dystrophy research and ways to participate.

Duchenne Muscular Dystrophy

These sites are specifically for families of children with Duchenne Muscular Dystrophy.

Myotonic Muscular Dystrophy and FSHD

These sites are specifically for families of children with Facioscapulohumeral and Myotonic Muscular Dystrophy