1. Parenting & Family

Discuss in my forum

First Five Things to Do After Your Child Is Diagnosed with Muscular Dystrophy

By , About.com Guide

1: READ "Learning to Live with Neuromuscular Disease: A Message for Parents," a booklet from the Muscular Dystrophy Association.

2: BUY Muscular Dystrophy in Children: A Guide for Families for an overview of the issues you'll be facing. Compare Prices

3: JOIN an e-mail support group for your child's particular type of MD.

4: LEARN from the experiences of those who have written letters to parents of children newly diagnosed with neuromuscular diseases.

5: VISIT our listing of muscular dystrophy links for more information and ideas.

Do you have suggestions for parents of children newly diagnosed with muscular dystrophy? Tell them about that book that explained everything, that website full of resources, that e-mail group you still lean on, that experience with your child that made you see things differently. Those of us who have been there have important gifts to give those who have not yet done that. Offer your words of wisdom and experience where you see "Tell Your Tips" below.

©2012 About.com. All rights reserved.

A part of The New York Times Company.