1: READ "Talking to Children About Neurofibromatosis" for some compassionate advice.
2: PRINT a copy of "The Child with NF1" or "NF2: Information for Patients and Families" to read and share with family members.
3: VISIT the bulletin board on the Children's Tumor Foundation site to ask questions and get support from other parents.
4: LEARN from the stories of others who share their experiences with NF on the Neurofibromatosis Webring.
5: VISIT our listing of neurofibromatosis links for more information and ideas.
Do you have suggestions for parents of children newly diagnosed with neurofibromatosis? Tell them about that book that explained everything, that website full of resources, that e-mail group you still lean on, that experience with your child that made you see things differently. Those of us who have been there have important gifts to give those who have not yet done that. Offer your words of wisdom and experience where you see "Tell Your Tips" below.
