Before You Look for Information on Osteogenesis Imperfecta

Sorting through the wealth of online information on osteogenesis imperfecta can be a daunting task. What's worth reading, and what's a waste of time? Start with this recommended list of resources to find the information you need to understand and help your child.

On this Parenting Special Needs Site

There are lots of articles on this site of interest to parents of children with osteogenesis imperfecta, but these three will give you a good place to begin.

Around the About network

There's information on osteogenesis imperfecta all around About.com. These three sites will give you a good start.

Just the facts

These reference sites give good overviews of osteogenesis imperfecta diagnosis and treatment.

U.S. organizations

These U.S.-based organizations offer information, services and support to individuals with OI and their families.

International organizations

Organizations around the world provide support and information for families of children with osteogenesis imperfecta. Start with these three sites.

Research and testing

These sites offer information on osteogenesis imperfecta research and ways to participate.

Sites for parents

These sites by and for parents offer information, resources and advocacy.

Support groups

Finding a support group puts you in touch with parents who are going through the same things you are. These sites can help.

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