1: READ "Caring for Infants and Children with OI" for some practical advice.
2: BUY Growing Up with OI, a two-book set from the Osteogenesis Imperfecta Foundation that offers guidance both for you and for your child.
3: CONSULT "OI Issues: Child Abuse" to anticipate possible misinterpretations of your child's condition.
4: JOIN a support group like the OI Parents List to get help and support from others who know what you're going through.
5: VISIT our listing of osteogenesis imperfecta links for more information and ideas.
Do you have suggestions for parents of children newly diagnosed with osteogenesis imperfecta? Tell them about that book that explained everything, that website full of resources, that e-mail group you still lean on, that experience with your child that made you see things differently. Those of us who have been there have important gifts to give those who have not yet done that. Offer your words of wisdom and experience where you see "Tell Your Tips" below.
