Phenylketonuria

First Five Things to Do After Your Child Is Diagnosed with Phenylketonuria
A handful of easy, quick suggestions to help you get a fast start on helping your child diagnosed with phenylketonuria.

Before You Look for Information on Phenylketonuria
Start with these recommended resources for finding facts, strategies, and advice on parenting children with phenylketonuria.

Preparing the School for Your Child with Phenylketonuria
School can be a difficult place for children with phenylketonuria -- physically and socially. Let the school know what your child needs to be safe and healthy with these tips and printouts.

What Is Phenylketonuria?
A definition of PKU, with links to more information.

Children's PKU Network
The non-profit organization sends out free packets of information to families of newly diagnosed children, offers scales for purchase, and provides links to food and formula suppliers.

Toddler Protocol: Phenylketonuria
Outline of suggestions for doctors working with the families of PKU patients provides good ideas and resources, including a self-management timeline, games, and a cookbook.

Dietary Information
Booklets on the phenylalanine content of manufactured foods and baby foods, from the UK-based National Society for Phenlketonuria

PKU Fact Sheet
Information from the March of Dimes.

Health Dictionary: Phenylketonuria (PKU)
An entry from the Disney Encyclopedia of Children's Health.