Before You Look for Information on Phenylketonuria

Sorting through the wealth of online information on phenylketonuria can be a daunting task. What's worth reading, and what's a waste of time? Start with this recommended list of resources to find the information you need to understand and help your child.

On this Parenting Special Needs site

There are lots of articles on this site of interest to parents of children with phenylketonuria, but these three will give you a good place to begin.

Just the facts

These reference sites give good overviews of phenylketonuria diagnosis and treatment.

U.S. organizations

These U.S.-based organizations offer information, services and support to individuals with PKU and their families.

International resources

Organizations around the world provide support and information for families of children with phenylketonuria. Start with these three sites to connect with resources and individuals.

Medical resources

These sites from university PKU clinics offer medical information, practical assistance, and details of research on phenylketonuria.

Dedicated sites

These sites devoted to phenylketonuria offer friendly help and advice on living with restricted diets and medical worries.

Support

A support group, whether online or in-person, can be an important source of guidance in parenting your child with PKU. Start with these three resources.

Shopping

Find food that's safe for your child with phenylketonuria at these online stores.

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