1: ORDER a Newborn Express Pack from the Children's PKU Network, with a video, booklets and coupons for families of the newly diagnosed.
2: READ some personal stories of families of children with PKU and a 10-year-old who lives with it.
3: REVIEW a Self Management Timeline to get an idea of what you'll be doing with your child in years to come, then bookmark the site it's on for reference as your child grows.
4: JOIN the PKU Mailing List to meet and share with others who have been where you are.
5: VISIT our listing of phenylketonuria links for more information and ideas.
Do you have suggestions for parents of children newly diagnosed with phenylketonuria? Tell them about that book that explained everything, that website full of resources, that e-mail group you still lean on, that experience with your child that made you see things differently. Those of us who have been there have important gifts to give those who have not yet done that. Offer your words of wisdom and experience where you see "Tell Your Tips" below.
