Parenting a Child with Prader-Willi Syndrome

First Five Things to Do After Your Child Is Diagnosed with Prader-Willi Syndrome
A handful of easy, quick suggestions to help you get a fast start on helping your child diagnosed with Prader-Willi Syndrome.

Before You Look for Information on Prader-Willi Syndrome
Start with these recommended resources for finding facts, strategies, and advice on parenting children with Prader-Willi Syndrome.

Preparing the School for Your Child with Prader-Willi Syndrome
School can be a difficult place for children with an attachment disorder -- physically, socially and academically. Let the school know what your child needs to be safe and successful with these tips and printouts.

What Is Prader-Willi Syndrome?
A definition of PWS, with links to more information.

Prader-Willi Syndrome Association (USA)
Organization offers information for parents and educators, listings of local chapters and care providers, online support groups, conferences on PWS, and free packets for families of newly diagnosed children.

Prader-Willi Syndrome Association (UK)
Site includes listing of events, stories of children with PWS, a section offering support for siblings, and help with dietary management.

Prader-Willi Syndrome
Information from the About.com guide to Rare and Orphan Diseases.

The Foundation for Prader-Willi Research
Information on and fundraising for research on PWS and ways to treat it.