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Before You Look for Information on Prader-Willi Syndrome

By Terri Mauro, About.com

Sorting through the wealth of online information on Prader-Willi Syndrome can be a daunting task. What's worth reading, and what's a waste of time? Start with this recommended list of resources to find the information you need to understand and help your child.

On this Parenting Special Needs site

There are lots of articles on this site of interest to parents of children with Prader-Willi Syndrome, but these three will give you a good place to begin.

Around the About network

There's information on Prader-Willi Syndrome all around About.com. Start with these three sites.

Just the facts

These reference sites give good overviews of PWS diagnosis and treatment.

U.S. organizations

These U.S.-based organizations offer information, services and support to individuals with Prader-Willi Syndrome and their families.

International organizations

Organizations around the world provide support and information for families of children with Prader-Willi Syndrome. Start with these three.

For parents

These sites feature information, resources and tools of use to parents of children with Prader-Willi Syndrome.

Research

Find out about research being done on Prader-Willi Syndrome, and how your child can participate, on these sites.

Support groups

A support group, whether online or in-person, can be an important source of guidance in parenting your child with PWS. Start with these three resources.

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