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First Five Things to Do After Your Child Is Diagnosed with Prader-Willi Syndrome

From Terri Mauro,
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1: READ the brochure "My Child Has Prader-Willi Syndrome ... Now What? on the Prader-Willi Syndrome Association site, then check out the association's other helpful brochures.

2: BUY the guidebook "Prader-Willi Syndrome: Coping with the Disease -- Living with Those Involved."

3: LOOK into the future by reading real-life stories of children living with PWS, complete with heartwarming photos.

4: JOIN Prader-Willi or an e-mail support group like it to get feedback from other parents.

5: VISIT our listing of Prader-Willi links for more information and ideas.

Do you have suggestions for parents of children newly diagnosed with Prader-Willi Syndrome? Please share them in the forum.
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