1: READ the brochure "My Child Has Prader-Willi Syndrome ... Now What? on the Prader-Willi Syndrome Association site, then check out the association's other helpful brochures.
2: BUY the guidebook Prader-Willi Syndrome: Coping with the Disease -- Living with Those Involved. 
3: LOOK into the future by reading real-life stories of children living with PWS, complete with heartwarming photos.
4: JOIN Prader-Willi or an e-mail support group like it to get feedback from other parents.
5: VISIT our listing of Prader-Willi links for more information and ideas.
Do you have suggestions for parents of children newly diagnosed with Prader-Willi Syndrome? Tell them about that book that explained everything, that website full of resources, that e-mail group you still lean on, that experience with your child that made you see things differently. Those of us who have been there have important gifts to give those who have not yet done that. Offer your words of wisdom and experience where you see "Tell Your Tips" below.
