Name of Blog or Site
Best Dressed Baby in the ICU
Address of Blog or Site
How Long It's Been Online
July 2010
Why I Started
This blog is my online journal as the mom of a medically fragile/special needs child, Ella Grace, who was diagnosed with Cornelia de Lange Syndrome (CdLS) at birth. I believe that we Special Needs Parents experience everyday life lot differently. I hope to bring some insight into OUR world so that others can develop an understanding and change their ideas about families like ours by helping to eliminate "the fear of the unknown."
How I Do It
Whatever I'm thinking, I'm going to write. Any experience I encounter that I feel can be a basis for facilitating change or educating others about special needs, I'm going to share. I will be completely honest and candid, and present my thoughts with a bit of humor.
Advice
- It's free therapy! A great opportunity for us to be able to express ourselves candidly in a world that doesn't understand what our lives are like.
