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Readers Respond: What's Your Advice for Parents of a Child Just Diagnosed With DWS?

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If you're the parent of a child with Dandy-Walker Syndrome, chances are you've gotten quite an education since you first heard that diagnosis. What would you say today to parents who are just getting the news? Tell them about that book that explained everything, that website full of resources, that e-mail group you still lean on, that experience with your child that made you see things differently. Those of us who have been there have important gifts to give those who have not yet done that. Offer your words of wisdom and experience here.

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