If you're the parent of a child with Prader-Willi syndrome, chances are you've gotten quite an education since you first heard that diagnosis. What would you say today to parents who are just getting the news? Tell them about that book that explained everything, that website full of resources, that e-mail group you still lean on, that experience with your child that made you see things differently. Those of us who have been there have important gifts to give those who have not yet done that. Offer your words of wisdom and experience here. Tell Your Tips
You are not alone!!
- There is such a supporting community of families affected by PWS. Focus on the present, on your beautiful baby, on love, on the positive. Don't look too far into the future, because for right now that doesn't matter! Watch our welcome video: http://www.youtube.com/watch?v=fhMLsq8souI&feature=g-upl&context=G2a0d74cAUAAAAAAAAAA
- —Guest Susanne
